1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Hyperparathyroidism: An Often Overlooked Differential Diagnosis to ME/CFS
Andrew Gladman puts hyperparathyroidism under the microscope, exploring what the disease is, how it can mimic ME/CFS in presentation and how it is treated.
Discuss the article on the Forums.

Experiences with Homeo KMAF?

Discussion in 'GcMAF' started by Symptomatic, Oct 30, 2012.

  1. knackers323

    knackers323 Senior Member

    Messages:
    634
    Likes:
    111

    Hi thanks for your reply. That would be great if you could post your test levels. Do you feel using it has helped any of your symptoms?
  2. Symptomatic

    Symptomatic Senior Member

    Messages:
    193
    Likes:
    74
    Please read through this thread, as my levels *have* been posted here (see 5/24/13 entry for latest). Still don't have my current results back, it may be another 3 weeks or so.

    Not sure if this is helping with symptoms, as I'm on a variety of other meds as well. Hard to say what's helping with what.
  3. Symptomatic

    Symptomatic Senior Member

    Messages:
    193
    Likes:
    74
    Nagalase test results:
    Oct 2012: 1.80
    April 2013: 1.20
    Nov 2013: 1.30

    I've been using Homeo-KMAF, 10 drops 2X/day during that time.

    Bummed to see the number hovering/increasing, rather than decreasing.

    Have others (regardless of which MAF you're using) plateaued like this? Did you need to increase your dose to continue to see a reduction of nagalase?

    Wondering if it's time for me to consider injectable Gc-MAF?
    Last edited: Dec 21, 2013
  4. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    6,386
    Likes:
    5,111
    Albuquerque
    With injectable mine went steadily down.

    Sushi
  5. Symptomatic

    Symptomatic Senior Member

    Messages:
    193
    Likes:
    74
    What was your nagalase when you started, and what is it now? How long have you been using Gc-MAF?
  6. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    6,386
    Likes:
    5,111
    Albuquerque
    I have been using injected GcMAF since Jan 2011. My first nagalase test was before they had perfected the test, i.e. it was experimental and failed. So my first successful test was after taking GcMAF for about 6 months. It was 1.8 if I remember correctly. My last test in March was .7.

    Sushi
  7. Symptomatic

    Symptomatic Senior Member

    Messages:
    193
    Likes:
    74
    Thanks!

    Dose/frequency? 100 ng, once a week?

    Have you had any herxing due to your immune system kicking in?
  8. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    6,386
    Likes:
    5,111
    Albuquerque
    100 ngs a week is way, but way too high a dose for me. I took 50 ngs for a few months but got too much inflammation. Now I take 25 ngs. per weeks. No herxing, just feeling better and things like herpes simplex clearing up, canker sores, etc.

    GcMAF keeps me stable and much more functional. Seems to prevent crashes for me.

    Sushi
  9. Shoesies

    Shoesies Senior Member

    So Sushi? Is your nagalase near normal yet? I am 10-11 months in an take a full gcmaf.eu dose weekly. I am better, I function at maybe 65-75% of what normal once was. My doctor just did new nagalase test wants me to top shots until it comes back. I have a little inflammation coming back - not sure what is causing it. Still on herbals, supplements and cautious diet. I confess to eating poorly around American Thanksgiving and I have been quite active. I want to LIVE - so I donate time to youth projects and lead the band at church. I just do not EVER want to go back where I was. Kinda scary.
  10. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    6,386
    Likes:
    5,111
    Albuquerque
    My nagalase is dead center normal now.

    Sushi
  11. Symptomatic

    Symptomatic Senior Member

    Messages:
    193
    Likes:
    74
    It sounds like you're still doing the injections though, is that correct? When is it OK to stop (or do you plan to stay on a "maintenance" dose)?
  12. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    6,386
    Likes:
    5,111
    Albuquerque
    Yes, I am still doing the injections. When and if you stop seems to be individual. My doctor wants me to continue and, in my experience, if I do take a break from them, I feel a bit worse. So, yes, at this point I am staying on a maintenance dose.

    Sushi
  13. Symptomatic

    Symptomatic Senior Member

    Messages:
    193
    Likes:
    74
    I guess I am due for another Nagalase test...still taking the Homeo-KMAF, but still considering the injectable.

    For anyone ordering Gc-MAF from gcmaf.eu, are you providing them with the "required" updates every two months?
  14. Symptomatic

    Symptomatic Senior Member

    Messages:
    193
    Likes:
    74
    Blood drawn for Nagalase testing today...will report results when I have them.
    golden likes this.
  15. Symptomatic

    Symptomatic Senior Member

    Messages:
    193
    Likes:
    74
    Results are in, and they are getting better! And this is by far the fastest turnaround of results I've had from HDRI.

    Nagalase test results:
    Oct 2012: 1.80
    April 2013: 1.20
    Nov 2013: 1.30
    May 2014: 0.98

    Taking 10 drops of Homeo-KMAF 2X/day. Have also been taking a variety of other things, including Benicar (40 mg, 4X/day), antibiotics, and earlier this year added Olive Leaf Extract.
    golden, maryb, ukxmrv and 1 other person like this.
  16. maryb

    maryb iherb code TAK122

    Messages:
    2,738
    Likes:
    1,757
    UK
    @Symptomatic
    do you take the Benicar for high blood pressure?
    Which antibiotics have you been taking?

    Glad to see your Nagalase levels come down, I'm sure you're quite elated.....really good news.
    Mine have been 2.30 and 2.50:(
  17. Symptomatic

    Symptomatic Senior Member

    Messages:
    193
    Likes:
    74
    @maryb

    I'm taking Benicar for high 1,25D / hypercalcemia / inflammation. My original post on page 1 of this thread gives my history.

    My most recent CRP was 3.4, which is an all-time low for me. I'd like to see that go down further.

    Antibiotics are Minocycline and Azithromycin. I also take low-dose naltrexone, low-dose Armour thyroid, and progesterone. And molybdenum, Vitex, and P5P.
    maryb likes this.
  18. maryb

    maryb iherb code TAK122

    Messages:
    2,738
    Likes:
    1,757
    UK
    @Symptomatic
    ah I see now why you're taking the Benicar. Thanks.
    Sorry I'm not up to reading too much, I know its annoying when you have to keep repeating yourself though. What infection are you treating with the a/biotics? Please just point me to the page if you've already explained that.

See more popular forum discussions.

Share This Page