August 8th, 2016: Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis
Jody Smith joins with other ME voices in honor of Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis.
Discuss the article on the Forums.

Experience with oral iron or infusion?

Discussion in 'General Treatment' started by fibrodude84, Sep 22, 2014.

  1. fibrodude84

    fibrodude84 Senior Member

    Messages:
    190
    Likes:
    114
    I have had iron infusions for anemia but didn't feel better after, I'm thinking it's because they got me into the low normal but it probably isn't enough.

    I have feosol iron pills, not sure how much I absorb but was told iron is inflammatory so I may only take it once a week to keep levels steady.

    Thoughts and exp on oral or IV iron as it relates to ME/CFS?
     
  2. NilaJones

    NilaJones Senior Member

    Messages:
    628
    Likes:
    329
    I have severe inflammation problems, but have never noticed iron contributing to them.

    I find Twinlabs iron caps much more effective for me than any other brand I have tried.
     
  3. fibrodude84

    fibrodude84 Senior Member

    Messages:
    190
    Likes:
    114
    I have inflammatory bowel disease so it may depend on the condition of inflammation.
     
  4. NilaJones

    NilaJones Senior Member

    Messages:
    628
    Likes:
    329
    makes sense to me :)
     
  5. barbc56

    barbc56 Senior Member

    Messages:
    3,524
    Likes:
    4,108
    @fibrodude84

    I also had an iron infusion. My sleep neurologist referred me to a hematologist as low iron, (actually it was my ferritin that was extremely low but blood count normal). affects Restless Legs Syndrom. That was three years ago and my ferritin is still in the normal range.I will not see him again unless my ferritin dips again.

    Low ferritin also has the same symptoms as anemia even though it is a slightly different type When the ferritin is depleted, it may start to affect your regular blood counts. Ferritin is not included with a CBC. Have you had this done?

    My hematologist thinks my low ferritin is an absorption issue. I have IBS and I can't take oral iron because of my stomach.

    As always, this was my experience and may not apply to yours.

    Good luck to you and hope you get some relief. Soon!

    Barb
     
    fibrodude84 likes this.
  6. fibrodude84

    fibrodude84 Senior Member

    Messages:
    190
    Likes:
    114
    I know they test folate but I'm not sure about ferritin. I wouldnt mind constipation from oral iron I just want to avoid bowel obstructions and surgeries.
     
  7. perchance dreamer

    perchance dreamer Senior Member

    Messages:
    1,169
    Likes:
    1,574
  8. fibrodude84

    fibrodude84 Senior Member

    Messages:
    190
    Likes:
    114
    Interestingly I popped an iron pill yesterday and feel better today. I also took a b complex which is more likely to have had an effect if anything.
     
    Last edited: Sep 23, 2014

See more popular forum discussions.

Share This Page