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Exercise therapy beneficial for some ME/CFS patients new Cochrane report says

Discussion in 'General ME/CFS News' started by deleder2k, Feb 11, 2015.

  1. deleder2k

    deleder2k Senior Member

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    Exercise therapy beneficial for some ME/CFS patients says the independent Cochrane Collaboration in new meta-analysis on exercise therapy.

    http://onlinelibrary.wiley.com/enhanced/doi/10.1002/14651858.CD003200.pub3

    Any thoughts on this? Is there no evidence to support the claim that exercise therapy makes some patients worse?
     
    Last edited: Feb 11, 2015
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  2. Sasha

    Sasha Fine, thank you

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    Just one word: Oxford.

    They've included studies with the discredited Oxford criteria.
     
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  3. Snow Leopard

    Snow Leopard Hibernating

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    I'm sure if they included "Systemic Exertion Intolerance Disease" patients, they'd get a different outcome right? :cat:
     
  4. anciendaze

    anciendaze Senior Member

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    Of course! The spelling is entirely different.
     
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  5. user9876

    user9876 Senior Member

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    They've not done a very careful review since they mark risk of both incomplete outcome data and selective bias for pace as green which I assume is low. They clearly haven't compared the protocol with the data that they chose to published.

    There results are wrong anyway since the summary stats don't make sense for the scales used.
     
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  6. A.B.

    A.B. Senior Member

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    It's almost as if SEID was made to counter certain claims about CBT and GET :whistle:
     
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  7. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    Precise wording:
    Funny, isn't it, that almost everyone here would appear to have a different illness from those which are studied?

    Not a laughing matter though. :(
     
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  8. Snow Leopard

    Snow Leopard Hibernating

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    How did they decide that the PACE study was not guilty of 'selective reporting' !?!

    Also, none of the 'moderate' findings were follow up data, suggesting further bias.
     
    Last edited: Feb 11, 2015
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  9. Roy S

    Roy S former DC ME/CFS lobbyist

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    "Assessed as up-to-date: 9 May 2014"
     
    And it's published the same day as the IOM report?
     
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  10. Sidereal

    Sidereal Senior Member

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    Interesting timing.
     
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  11. Dolphin

    Dolphin Senior Member

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    This is open access: http://onlinelibrary.wiley.com/doi/10.1002/14651858.CD003200.pub3/abstract


    I gave each sentence its own paragraph to make it easier to read
     
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  12. Iquitos

    Iquitos Senior Member

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    The very phrase exercise "therapy" is nonsensical and misleading. It's part of the propaganda of blame the patient for "fear" of exercise. If these psychobabblers were studying exercise "therapy" for ALS, MS, Parkinson's, polio and cancer, they would get the disdain they deserve. Only with ME/CFS (SEID?) do they have the gall to promote this proven detrimental "therapy."
     
  13. adreno

    adreno PR activist

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    Cochrane reviews are overrated.
     
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  14. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    This one seems to provide a stark illustration of that. I used to think they had some merit...
     
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  15. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    Just noticed that there is actually no mention of ME in the review, so they are just supposedly looking at CFS - whatever that is.

    Also noticed that the 'Editorial Group' is the 'Cochrane Depression, Anxiety and Neurosis Group'.

    Would I be right to assume that this would be made up of psychologists and, by inference from what we know about psychology researchers, that they are less rigorous than scientific reviewers?
     
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  16. Tom Kindlon

    Tom Kindlon Senior Member

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    Ellen Goudsmit has posted this on PubMed Commons http://www.ncbi.nlm.nih.gov/pubmed/25674924#cm25674924_9142:


     
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  17. Tom Kindlon

    Tom Kindlon Senior Member

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    I'm not sure this is correct. Anyone have evidence she is right?

    I may be biased but I think a good reference for this is my paper:

    I give the results from 10 surveys. I don't believe any other published gives that amount of survey data.
     
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  18. alex3619

    alex3619 Senior Member

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    I would like to coin a term, if it does not already exist.

    BIBO

    Babble In, Babble Out

    I don't know who invented GIGO, but it needed an update.

    The underlying flaws of the studies reviewed are ignored in the unjustified hope that they will go away. This might be OK for random bias, but the bias is systemic. Such bias is amplifed by meta-analyses.

    This is an exemplar of what is wrong in "Evidence" Based Medicine. When the underlying studies are given a pass on scientific rigor, guess what happens to the meta-analysis?

    I have found a different use of babble in, babble out, by Joanne Sales http://www.joannesales.com/articles/vacation_freedomfrom.html
     
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  19. lansbergen

    lansbergen Senior Member

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    Rubbish in -> rubbish out.
     
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  20. Kati

    Kati Patient in training

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    Sadly, many of the Cochrane reviews end up in clinical guidelines for physicians. It is how CBT and GET ended up in clinical guidelines here in British Columbia.

    Many busy physicians (.including those in general practice) couldn't be bothered researching deeper, so they rely on meta analysis to get to the conclusions and direct their practices.

    Papers like these are the most dangerous. (and not the IOM report)
     
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