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exercise, heat and compression clothing

Discussion in 'General ME/CFS Discussion' started by Allyson, Apr 6, 2013.

  1. Sherlock

    Sherlock tart cherry etc. for joints, insomnia

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    Czechosherlockia, USA
    Hi, did you test with urine pH strips? I've been finding that sometimes it takes a lot to get the color to move to the blue end, much more than usual. (Always on an empty stomach, of course.)

    Then the next day, things will respond normally. It seems as if sometimes I get a real buildup of acidity that needs to be tamped down.

    Do you get that crushing feeling of pressure in the chest during cold immersion? I don't know how that might relate, but I do think that I might get it more strongly than average.
    Have you alternately tried lots of antioxidants beforehand? Or anti-inflammatories?
     
  2. Sherlock

    Sherlock tart cherry etc. for joints, insomnia

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    Czechosherlockia, USA
    Btw, a warning on baking soda: it's well known that too much gives a laxative effect. Come to think of it, if a person never got that effect, then that might be a good sign that you didn't have enough.
     
  3. Sherlock

    Sherlock tart cherry etc. for joints, insomnia

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    Czechosherlockia, USA
    Interesting, which would explain the shakes that others reported in this thread (adrenalin release to raise blood glucose)

    As to mechanism:
    http://www.bioenergy.com/pdf/mf/sl/Ribose & Blood Sugar/Ribose_Blood Sugar_Science 070303.pdf

    So that explains why people take it for energy during exercise, and better energy-recovery after. But why would it help prevent muscle soreness?
     
  4. Allyson

    Allyson *****

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    Australia, Melbourne
    thansk sherlock, yes tendons and ligaments are connective tiisue too so anyone with EDS or CTDs is prone to damage there as well
     
  5. Allyson

    Allyson *****

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    Australia, Melbourne
    thanks bacca
    thanks baccarat
    yes i notice nonw for league footaballers they are putting them in refrigerated units in game breaks so the cold must do something - or stopping the heat . Not sure how it works just read a passing reference to it and found it interesting as the old thery was to stay warm to keep your muscles warma dn prevent muscle injures - the cold myust improve perfomance or they wouldn't be doing it.
     
  6. lastgasp

    lastgasp

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    Ugh, you're kidding. Lying down makes NO difference at all to the effect of muscle activity (or cognitive or sensory input) in ME. ME is partly a muscle disease not simply an orthostatic problem.

    It really annoys me that there are some CFS "experts" now telling people exercise is okay as long as we lie down. So now we're hearing people saying they exercised lying down and couldn't understand why they relapsed. :aghhh:

    Same with art. Repeated muscle activity, even if individually very small, together with loss of fine motor control and cognitive problems = exacrbation. Some people it's within their ability tho.

    I'd be working from bed if none of that was true!

    And cool temperatre makes little difference, I usually feel sicker in winter or in a current of cool air and may or may not slightly improve in mild summer days. Sometimes i've felt sicker when it's very hot, other times I even felt it helped while it lasted.

    But just staying upright enuff to travel + sensory overload + communication would be unsafe for me without a severe pressing reason nowadays.
     
    Valentijn likes this.
  7. lastgasp

    lastgasp

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    How on earth did you get food, go to the bathroom, fetch your mail, deal with emergencies if you rigidly kept to 40 seconds, which you instead spent on an unnessential activity of lifting an object that had no other purpose?

    From where else did you "steal" the forty seconds from? If I spent 40s lifting a weight I'd have to spend at least 40s less time here, probably much more because the weight is the bigger impact. This is something that the GET/GA people need to understand. With ME, the total energy pool really is finite because it's not deconditioning that's pressing down on the sufferer, it's the disease process. And what if you spend 10s longer eating or something one day, I find it hard t believe people can conform to each second of the clock.

    Was the bad effect DOMS only or something else (such as severe spinal pain, feeling feverish or chilled, feeling fluey, profoundly intense toxic feeling, temporary paralysis, loss of cognitive ability, even worse stuff I can't think of right now?)

    Did you have transient paralysis at all, i.e. sometimes you couldn't move? Do symptoms fluctuate markedly within a day? Do you have fasciculations, myclonus, clumsiness?.

    If you have ME, guess what, your muscles aren't working right!
     
  8. lastgasp

    lastgasp

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    Well partly, you only covered muscle problems and said they were "almost" burning ;)
    Muscle pain in ME might be due to tearing as well as lactic acidosis.

    Although often the only muscle limitation in late stage ME is weakness. You've got all the general, multi-systemic symptoms I mentioned in the other post as well and a lot more besides. And while it's taking a very long time to improve (if it does) you're at increased risk of compounding it.
     
  9. taniaaust1

    taniaaust1

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    Sth Australia
    D-Ribose doesnt do anything for me either. (I hope I havent already said that).
     
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  10. taniaaust1

    taniaaust1

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    I think its all about choice.. spending 40 seconds doing a weight routine could be more worthy to many then spending 40 seconds here. My body became VERY WEAK at one point cause my muscles etc had gone so long without being able to be used properly (eg bedridden for much of the time)... the result of that was I hurt my back just picking up a wee thing from the ground due to my then weakened back muscles. That then resulted in me having to be in hospital for a week (I discharged myself after a week, doctor wanted me in longer) as I couldnt even mov my back slightly (without screaming in pain and passing out in pain). I dont think you should knock someone for doing bouts of 40 second weight training exercises.. If I had done even a short time like that each day. my back muscles probably wouldnt have become so weak and I wouldnt have injured myself due to that.

    With the very sick and those who muscles can be a big issue. even just going 10 seconds over ones limit CAN cause issues. I know going 10 seconds over my limit if Im scrubbing clothes in a laundry trough with my arms.. can then end up causing me pain for hours (and can affect my arms into the next day). I reach my point where I should stop scrubbing about 40-45 seconds and 10 more seconds can make a huge difference on my outcome of whether I will have after effects or not. ( I can thou scub "ok" (its still challenging!!) for 60 seconds if I take a small break ..usually I need several small breaks towards the end of that time eg 6-20 seconds in that 1 min period).
     
  11. rosie26

    rosie26 Senior Member

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    Hi Baccarat

    Can you tell me what might get worse ? when taking D Ribose long-term. Are you meaning hypoglycemic problems. ?

    You said anyone who suffers from pem or adrenal insufficiency using ribose long-term might make things worse.

    I would be interested to know what you mean as I take D Ribose. Thanks.
     
    Last edited: Feb 25, 2014

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