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excrement experiment

Discussion in 'The Gut: De Meirleir & Maes; H2S; Leaky Gut' started by voner, Nov 26, 2014.

  1. voner

    voner Senior Member

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    there's a article in the New Yorker magazine out this week about fecal transplantation. I found the part about Larry Smarr and his exploration of his microbiota in his gut to be pretty interesting.

    I also found this FDA spokesman's statement justifying the unusual exception to their standard drug development protocol to be one to keep in mind whenever the FDA is considering treatments for ME/CFS, etc.

    "there are often few or no other treatment options for these patients."

    at the present time there's no pay wall, so everyone can read this article:

    http://www.newyorker.com/magazine/2014/12/01/excrement-experiment
     
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  2. voner

    voner Senior Member

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    as a follow-up to my previous post, I thought many people might be interested in this abstract?/poster from the 2014 IACFSME conference. (which has been posted on Phoenix rising forms before)....

    comments?
     
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  3. snowathlete

    snowathlete

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    Given the title I was expecting something about PACE or somesuch. :D

    Something I don't understand fully is what makes the reads "high quality" as apposed to other reads they may have got. Anyone know?

    I'm always interested in comparing my own results with such studies, though often, as in this case, my results don't match. I had high Roseburia and very low Ruminococcus. The gut biome is complicated and ultimately this is just one slice of data. I suspect that we will only find meaningful answers when we look at all organisms in the gut, not just bacteria but fungi and viruses and so on, and we need studies with greater numbers of patients involved who meet stricter criteria than Fukuda. We're very lucky to have Prof Lipkin keen to do such a good study for us. We just need to help make it happen.
     
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  4. Hip

    Hip Senior Member

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    Last edited: Nov 28, 2014
  5. aimossy

    aimossy Senior Member

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    @voner Thank you for putting this up, the New Yorker article is a very entertaining and interesting read...
    Maureen Hanson's paper is very interesting as well. Hoping it will be published soon and really hope the Columbia research eventually gets funded and done.

    Hanson's paper
    "a reduction in members of the Bacteroidetes and an increase in members of the Firmicutes in the patient population, also reported in Crohn’s disease and acute ulcerative colitis."

    It is all so interesting and so important and hoping they collect a bucket load of data in the Columbia research so they can start sorting out which findings would be meaningful.
     
  6. xks201

    xks201 Senior Member

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    Does anyone know of any doctors or way to apply for this treatment?
     

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