The entire evidence based medicine issue for ME (and CFS) is a nightmare. People have begun discussing it here: http://forums.phoenixrising.me/showthread.php?16366-Advocacy-Brainstorming-The-Thread-on-Threads This needs a new thread as it is off topic for that thread, so here it is. Evidence Based Medicine (EBM) has been called Zombie Science. The argument that it is the only way forward is probably right, but how it is being done is by distortion, half-truths and political or funding priority. The concept is good, the execution is likely to be a brake on medical progress and a detriment to the public. This thread is for discussing advocacy toward either EBM or the need for evidence to back theories and treatments, as well as the problems that arise. Discussions of EBM and the need for evidence are OK, but it might need another thread in another section. I will post more on this later. PS On Zombie Science you might like to start with: http://www.mecfswa.org.au/News_and_Media/News_Details/Zombie_Science_in_ME-CFS/Default.aspx For a thread on Zombie Science and EBM specifically, see: http://forums.phoenixrising.me/show...ncl-one-calling-it-a-quot-Zombie-Science-quot That thread is a better place to discuss the science (or otherwise) of EBM, whereas this thread is to discuss what advocacy can do about it.