Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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Discussion in 'General Treatment' started by Questus, May 6, 2011.

  1. Questus

    Questus Senior Member

    Have thought about this over the years, but CFS/ME is predominate in North America, the U.K. and Australia...

    Is anyone on this site either Asian, African-American or Hispanic?

    Am curious what the statistics are.
  2. ukxmrv

    ukxmrv Senior Member

    I think Lenny Jason did a study on this. Remember high rates in racial minorities in the USA.
  3. caledonia


    Cincinnati, OH, USA
    Due to the language barrier, we have the best stats for English speaking countries, but it's all over the world.

    Here is a link to my video on epidemics and prevalence

    Also, what ukxmrv said about the Jason study.
  4. taniaaust1

    taniaaust1 Senior Member

    Sth Australia
    It is everywhere, unfortunately no country is immune to it. The big issue is that some countries dont recognise ME/CFS as a real illness at all and it hence "dont exist" there as such. There was someone on this forum not long ago who I chatted to in the chat who was in a country in which it isnt at all aknowledged and in his country there wasnt even any associations or support groups for it either.

    Many non English speaking thou do have their own associations or support groups and some also call it something different then CFS. (CVS?? I cant quite remember but it was something different anyway).

    It is quite possible to be slightly different rates of it in different countries even if the same definitions were to be used.. due to the different triggering factors which could come into things in different countries... eg lyme in some countries in which 10% dont recover and end up being diagnosed with CFS.

    In Australia thou we dont have Lyme as such (thou we do have Rickettsia another tick illness which many CFSers do also carry).. we have a mosquito triggered illness called Ross River Virus esp in our Aussie tropic regions which 10% who are affected dont recover and end up with CFS diagnoses.

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