Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Esther Crawley - Research scandal posted on the student room

Discussion in 'General ME/CFS Discussion' started by slysaint, Aug 30, 2017.

  1. slysaint

    slysaint Senior Member

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    W. Sussex UK
    Someone's tried to alert Bristol Unis students about the problems with Crawley and her 'research' including the recent issue regarding ethical approval.
    https://www.thestudentroom.co.uk/showthread.php?t=4913512

    "I thought people could be interested in the problems with a researcher at Bristol University.

    There's a wide range of problems with Esther Crawley's work.

    She decuded to use children as the participants in the SMILE trial, the first trial of Phil Parker's quacky 'Lightning Process ". While she has still failed to publish results from this trial (although the trial registration state the recruitment end date as being 31/03/2013) she is now recruiting for MAGENTA. Both of these trials were nonblinded with subjective self-report questionnaires for their primary outcomes, meaning that results could never be reliable.

    Prof Coyne blogged on these here: http://blogs.plos.org/mindthebrain/2...be-considered/

    Crawley failed to seek appropriate ethical approval for some of her research on children: http://www.virology.ws/2017/08/28/tr...absence-study/

    Crawley has been a key promoter of the PACE trial, a seriously flawed piece of research which recently led to a special issue being published by the Journal of Health Psychology: http://journals.sagepub.com/toc/hpqa/22/9

    Over a hundred academics and patient groups have called for the retraction of a paper which used spun and inaccurate statistics to claim the PACE showed a recovery rate of 22% for the researcher's prefered treatments: https://www.nytimes.com/2017/03/18/o...-syndrome.html

    Crawley went made even more exaggerateed and indefensible claims, publishing a paper which stated that PACE "indicated a recovery rate of 30-40% one year after treatment." http://www.centreforwelfarereform.or...ial/00296.html

    Are any of Bristol's students aware of these problems? Any way of raising concern about these matters to try to stop them from getting worse? "

     
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  2. trishrhymes

    trishrhymes Senior Member

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    Well done to the student who wrote this. It doesn't seem anyone has responded so far in the 2 days since it was posted. I'm surprised there is public access to a student forum.
     
  3. Barry53

    Barry53 Senior Member

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    Whoever the student is, they seem up to speed on the issues.
     
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  4. sarah darwins

    sarah darwins I told you I was ill

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    I guess it's still university vacation, so all the students are getting drunk in Patmos instead of Bristol (I would be)
     
    Grigor, Barry53, boombachi and 4 others like this.

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