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Esther Crawley - 18th May 2017 - A day with the MUPP(ets) and more

Discussion in 'General ME/CFS News' started by slysaint, May 17, 2017.

  1. slysaint

    slysaint Senior Member

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    W. Sussex UK
    http://www.swpc.org.uk/Exeter2017SWPCProgramme.pdf

    South West Paediatric Club
    A Day with the MUPPETs (Medically Unexplained Physical, Psychological Symptoms)

    15.30 Victor Neale Memorial Lecture:

    CFS/ME, what we know and research updates.
    Professor Esther Crawley, Bristol Children's Hospital

    Can anyone cover this?
     
    Dechi, MEMum, Woolie and 18 others like this.
  2. A.B.

    A.B. Senior Member

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    Muppet is British slang for idiot, right?
     
    concepcion, Jo Best, MEMum and 20 others like this.
  3. Countrygirl

    Countrygirl ME is not MUS

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    Just dire!

    The medics at the hospital are very anti-ME patients and quite contemptuous and dismissive in their treatment.

    We don't need this injection of misinformation from EC.

    I assume you have to be a medical professional to attend?????
     
    Last edited: May 17, 2017
  4. Cheshire

    Cheshire Senior Member

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    A Day with the MUPPETs
    Everything you need to know about children with fatigue

    Sounds like cheap TV commercials.
     
    MEMum, Woolie, ladycatlover and 5 others like this.
  5. Large Donner

    Large Donner Senior Member

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    Yes it is. Just how much more condescending and unethical can you be right in front of everyone eyes?

    When you call someone a muppet you are basically saying their opinions should not be taken seriously and they are talking rubbish.

    So they are now promoting that other physicians should see kids with any kind of fatigue as muppets.
     
    MEMum, Esperanza, Sidereal and 23 others like this.
  6. SamanthaJ

    SamanthaJ Senior Member

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    Thought the title was a joke. No, they really are that crass. The whole thing's horrifying.
     
    taniaaust1, Wolfiness, MEMum and 18 others like this.
  7. lilpink

    lilpink Senior Member

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    If this was 'A Day with the 'Spastics' :everything you need to know about children with cerebral palsy' there would be uproar. I appreciate one is a now outdated term and the other is an acronym but they both present the same connotations of prejudice. I thought I'd seen it all with Crawley's hideous libelous posting at the recent talk to renal consultants, but this takes the biscuit. Tbh it takes the whole Tesco biscuit aisle.
     
  8. A.B.

    A.B. Senior Member

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    I prefer when they say it openly instead of thinking it and then forcing themselves to pretend to respect patients.
     
  9. lilpink

    lilpink Senior Member

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    It's almost as if they're asking for career suicide. It's bizarre. And these people are paid to 'care'? :bang-head::devil:
     
  10. trishrhymes

    trishrhymes trishrhymes.wordpress.com

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    I'm so shocked I can hardly breathe.

    How can it ever be ethical to make such a crass insulting joke about sick and disabled kids.

    Muppets - dictionary definition 'an incompetent or foolish person'.

    And this is being advertised by an organisation for people working with children with special educational needs.

    Can anyone in the local area alert this organisation to the reality of EC and her poisonous views and bad science? Maybe send them copies of the slides from the recent renal association talk, and explain the misuse of photos, insult to patients, scientists, David Tuller etc. Maybe wait for the MEA response to this later this week and use it if appropriate.

    @Countrygirl , @Molly98 ?

    I notice she's not even pretending it's about CFS now, just 'chronic fatigue'.

    Edit: I've just looked at the flyer more carefully. It's not EC who came up with the title MUPPETS, it's the organisation running the day. WTF.
     
  11. Yogi

    Yogi Senior Member

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    MEMum, ladycatlover, atleje and 4 others like this.
  12. Countrygirl

    Countrygirl ME is not MUS

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    Just dire and double dire!

    I now have problems myself with this set up! Geesh!

    (see my post about questions from the fatigue clinic just now)

    Muppets!

    I am still trying to digest this!
     
  13. Countrygirl

    Countrygirl ME is not MUS

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    We so need someone to attend this.

    I guess it has to be someone with a medical qualification. Does anyone know for certain?
     
  14. Countrygirl

    Countrygirl ME is not MUS

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    Which local organisation, @trishrhymes ?
     
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  15. Tyto alba

    Tyto alba

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    I thought that this was some sort of joke at first. Flabbergasted!
     
  16. Countrygirl

    Countrygirl ME is not MUS

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    Speechless!

    It is typical of the attitude of the local medical profession towards people with ME sadly.
     
  17. trishrhymes

    trishrhymes trishrhymes.wordpress.com

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    The South West Pediatric club, as named on top of the flyer. I assume from the fact that it's at a hospital and says in small print at the bottom 'RCPCH approval for CPD applied for and awaited', that it's a group for pediatricians in the South West of England. Must have some kind of history and official standing if they have a memorial lecture and trainee prize giving and call it a conference.

    Looking at the speaker list and topics, I think we're probably on a hiding to nothing trying to alert them to the perfidy of Crawley. I suspect they are all firmly in the BPS camp already and probably her biggest fans. It would be great to get someone to attend and report on her talk as well as all the others, but I can't see how we can. Does anyone know a friendly doctor with a day to waste?
     
  18. Mohawk1995

    Mohawk1995 Senior Member

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    "Our approach to leadership development begins with curiosity; leaders seeking to understand and discover answers to the real challenges that they face. It promotes compassion towards ones self and others, appreciating our human struggles and accepting that we do not work in an emotional vacuum. It leads to leaders becoming more courageous and confident to choose to do what is right rather than what is easy."

    First off leadership does not begin with curiosity, it begins with humility. Bear in mind humility is not the lack of confidence, it is the highest level of confidence which then opens the door to listening to others. Then if one is curious, which of course they should be, it leads to seeking to understand others viewpoints, having open dialogue (including disagreements), analyzing the data/feedback and then leading in a way so the team can "discover answers to the real challenges that they face".

    Also, as a leader I am not concerned with compassion towards myself, I have enough compassion there already. What I need more of is compassion for others. I would agree that we do not work in an emotional vacuum, but from the sound of it the CBT/GET ME treatment crowd did very little to acknowledge the emotions of the patients they took on the responsibility to treat.

    This all sounds far to egocentric to me. I am sure they "get results", but if humility is not first and foremost, at what expense?
     
  19. Countrygirl

    Countrygirl ME is not MUS

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    http://www.swpc.org.uk/meetings.htm

    Spring Meeting, Thursday 18th May 2017
    RILD lecture theatre, Royal Devon and Exeter NHS Foundation Trust
    Meeting Fees
    Medical Students / Retired Members:

    £25
    Member Consultant / SASG:

    £40
    Member Trainee, Nurses, AHPs:

    £25
    Non Member Consultant / SASG / GP:

    £80
    Non Member Trainee:

    £60



    Meeting Dinner:

    £15
    The South West Paediatric Club is pleased to be able to send further information about the forthcoming Spring Meeting in Exeter in May; allowing plenty of time to clear the diary and make the necessary swaps…

    “A day with the MUPP(ET)S” - a study day on the Medically Unexplained Persistent Physical Symptoms.
    Thursday May 18th, 09.30-16.30 at the RILD lecture theatre, Royal Devon and Exeter NHS Foundation Trust

    We will be covering topics such as Chronic pain, Chronic fatigue, Ehlers Danlos and POTS, with speakers including Dr Hannah Connell, Clinical lead and psychologist for Bath paediatric chronic pain service, and Dr Rory Conn, Liaison Psychiatrist from London. Our open forum discussion sessions will highlight pilot schemes in the area and will allow for case discussions brought in by clinicians and allied health professionals form around the region.

    There will also be an opportunity for trainees to give poster and oral presentations, the closing date for abstracts will be in mid-late April.

    Abstracts are invited; please submit no more than 250 words to david.bartle@nhs.net by Monday 24th April 2017

    See the full programme here for what promises to be a fascinating and interesting day that will be relevant to us all, whatever the specialty.

    Register for the Meeting and if relevant pay online for the meeting and dinner
     
    Laelia, Hutan, Esther12 and 1 other person like this.
  20. Countrygirl

    Countrygirl ME is not MUS

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    I do, but she might be too sick to attend.

    I will make a phone call.
     

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