Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Epistemic injustice in healthcare encounters: evidence from chronic fatigue syndrome

Discussion in 'Latest ME/CFS Research' started by Tom Kindlon, Dec 5, 2016.

  1. Tom Kindlon

    Tom Kindlon Senior Member

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  2. trishrhymes

    trishrhymes Save PR. Sack the President of the Board.

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    Looks good from the abstract. Full article seems to be behind a paywall.
     
  3. Yogi

    Yogi Senior Member

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    Kati and MeSci like this.
  4. Tom Kindlon

    Tom Kindlon Senior Member

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  5. AndyPR

    AndyPR RIP PR :'(

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  6. Kati

    Kati Patient in training

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  7. ghosalb

    ghosalb Senior Member

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    For most of us, this encounter injustice is as painful as the decease itself. Therefore, we patients/advocates should ask NIH to fix this problem first. Only NIH is able to do this by contacting as many doctors as possible. This does not need expensive research, scientists etc. Not a single non-CFS doctor I spoke to since NIH announcement were aware of the fact that it is a real decease and NIH is taking it seriously.
     
  8. soti

    soti

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    Yeah. Just had such a meeting with such a doctor so it is fresh in my craw...er, mind.
     
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  9. Jenny TipsforME

    Jenny TipsforME Senior Member

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  10. valentinelynx

    valentinelynx Senior Member

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    Tucson
    Here
     
  11. Tom Kindlon

    Tom Kindlon Senior Member

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  12. Tom Kindlon

    Tom Kindlon Senior Member

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  13. Tom Kindlon

    Tom Kindlon Senior Member

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    An interesting concept:
     
  14. Tom Kindlon

    Tom Kindlon Senior Member

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  15. Tom Kindlon

    Tom Kindlon Senior Member

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    Similar to the last quote:
     
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  16. Tom Kindlon

    Tom Kindlon Senior Member

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    This is explained more in the text:
     
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  17. Tom Kindlon

    Tom Kindlon Senior Member

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  18. Esther12

    Esther12 Senior Member

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    I was sure I'd already posted praise of this paper when it came out, but can't find where now. I might have read a print out and then forgot to post comments. Thanks to @Tom Kindlon for pulling out those quotes, and of course thanks a lot to @Keith Geraghty for all his work on drawing attention to these problems.
     
    rosie26, Molly98, Sean and 2 others like this.
  19. Sean

    Sean Senior Member

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    Exhibit A for just how extreme and dangerous this injustice can get:

    "Refusal of treatment may trigger questions about mental capacity." (Source)

    It is not the mental capacity of patients that is in question, it is the moral capacity of those making the above statement.
     
  20. TiredSam

    TiredSam The wise nematode hibernates

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    If you don't accept treatment for your mental condition, you have just proved that you have a mental condition. Whoever thought this one up would have been developing tests for witches 400 years ago. What next, diagnosis by ordeal of the cursed morsel?
     

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