1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
ME/CFS: In Free Fall Through the Looking Glass
Jody Smith continues to try to put into words the horror of the altered state that hobbles the brains of those with ME/CFS...
Discuss the article on the Forums.

enteragam for gut issues

Discussion in 'The Gut: De Meirleir & Maes; H2S; Leaky Gut' started by BFG, Apr 17, 2014.

  1. BFG

    BFG

    Messages:
    78
    Likes:
    19
    Sacramento, CA
    Hey guys,

    Have any of you tried this new prescription medical grade food? Its called enteragam and it is made from bovine serum immunogobulins to treat hiv enteropathy and ibs d. It was a former xymogen product called igg2000 df and a product called immunolin(which is discontinud), but i think it has changed and now is only a pscription product.

    http://www.enteragam.com

    I am going to try it and see if it helps my severe food intolance and gut issues.
    Last edited: Apr 17, 2014
    xchocoholic likes this.
  2. minkeygirl

    minkeygirl Senior Member

    Messages:
    2,006
    Likes:
    1,259
    Left Coast
    I think @maryb was trying something from Xymogen but it was OTC I'm not sure if it was this or something else.
  3. globalpilot

    globalpilot Senior Member

    Messages:
    575
    Likes:
    191
    Ontario
    I have not tried it but my gastroenterolgoist recommended it might be worth a try. I forgot about it until you mentioned it.
  4. BFG

    BFG

    Messages:
    78
    Likes:
    19
    Sacramento, CA
    Its expensive ifinsurance wont cover it, 375 for month supply. Im gonna try it anyway because i really need to stop my diarrhea. Let you guys know how it goes.
  5. minkeygirl

    minkeygirl Senior Member

    Messages:
    2,006
    Likes:
    1,259
    Left Coast
    @BFG Look into acacia fiber for your diarrhea. I have IBS-C but according to Heather, this works on both.

    Here's the link to her site. It would be a cheaper way to see. iHerb has it and so does Amazon.

    http://www.helpforibs.com/Default.asp
  6. Ema

    Ema Senior Member

    Messages:
    3,111
    Likes:
    3,160
    Midwest USA
    I would be very cautious. $375 for a month's supply is really expensive for a trial if you haven't exhausted other options that might work as well and be much cheaper.

    Are you taking probiotics? Saccharomyces boulardii, in particular, is very helpful for diarrhea.

    You can still buy the Xymogen IgG 2000df product online for about $40. I tried it once, noticed nothing, but it was well before I had made any inroads into treating infections etc. But $40 is a lot better than $375.

    Designs for Health GI Revive is also well reviewed by a lot of doctors for healing gut issues. It's expensive as well but at $60 is still a lot better.

    If the other product was discontinued, it's a good bet that it wasn't working well enough to sell well. That's a big red flag to me.

    I can't see how it justifies the high price tag myself unless they are hoping that enough people will be able to get insurance reimbursement. I wouldn't pay for it out of pocket personally.
  7. Aileen

    Aileen Senior Member

    Messages:
    534
    Likes:
    401
    Canada
    @BFG You might want to try a probiotic called Aline. It is a specific patented strain of Bifido infantis. There have been clinical trials showing it is helpful for women with IBS. I don't think it matters which form of IBS. It is available online or in pharmacies. Info here

    I started a box 1 1/2 weeks ago. Tolerating it so far. I think it cost around $35 per box (1 month supply). It comes in blister packs. 7 capsules on a card, helpfully labeled with the days of the week. Take 1 per day.
  8. BFG

    BFG

    Messages:
    78
    Likes:
    19
    Sacramento, CA
    @minkeygirl never heard of acacia. Did it work well for you?

    @Ema I've always wanted to try s bouliardi. But I'm sort of cautious because I've read studies saying immunocompromised patients have had fungemia infection from s boulardii. And I think I count as immunocompromised.

    @Aileen thanks for the suggestion I tried back then and had explosive diarrhea.

    Due to my symptoms I think I might have sibo even though breath tests were negative.
  9. Ema

    Ema Senior Member

    Messages:
    3,111
    Likes:
    3,160
    Midwest USA
    The people who got fungemia seem to have gotten it from a central line or the like while in ICU and not from typical oral supplementation.

    There are a couple of reports of people with perforated intestines having problems as well.

    But obviously it is an individual decision.

    But overall I think it is very safe and useful and is recommended by many immunologists.
  10. minkeygirl

    minkeygirl Senior Member

    Messages:
    2,006
    Likes:
    1,259
    Left Coast
    @BFG I have ibs-c. Without acacia fiber I would not go. She says it works for diahrea too so worth a shot. But you have to build up slowly and use it daily.
  11. BFG

    BFG

    Messages:
    78
    Likes:
    19
    Sacramento, CA
    Justa follow up on how i did with enteragam.

    I only took it for one day and Took about one tenth of the recomennded dose. It sememed to give me a bit of energy for a little while and then it greatly increased my pins and needle and neuropathy feeling all over my body. This lasted for 4 days then started to die down. It may be just me becuase i had a similar rxn to colostrum. I called the enteragam maker and spoke with their md director and he recommended i discontinue. He also told me the product is high in glutamic acid, which makes sense becuase it also made my excitotoxicity worse.

    The good thing the day after i took it i had a perfect looking stool whearas before that i was having diarrhea and undigested foods. Havnt had that in a long time. I wish i could continue, but thats another thing to cross off my list.
  12. D_fla

    D_fla

    Messages:
    1
    Likes:
    0
    Hello Everyone!!!
    I just spotted this thread today, and I have to interject. I have had chronic IBS for about 15 years and I have tried everything from here to Europe (literally) to try and help with my pain and discomfort. It had completely taken over my life and definitely interfered with my mothering as my children were growing up. I started Enteregam 3 months ago and it has changed my life! My doctor has been giving me samples as the price is very expensive, but when that runs out I will just have to find a way to afford it. I would see if you all can get a few samples from your gastro because my life has seriously taken a 180 because of it. I'm a firm believer!! If I miss a day my husband and I both notice right away. He notices my energy drop but I of course feel it elsewhere. Regardless, it's definitely the ONLY thing that has helped me in years.
  13. sgcray

    sgcray

    Messages:
    3
    Likes:
    0
    That's amazing! I'm needing to know what the ingredients are and how many millegrams or grams there are and how often/day. My now grown adult children were directly affected too over the last 12 yrs by my IBS-D. I also have GERD (Caused by the IBS.). Have tried to get disability before. My husband became disabled at 49 three yrs ago, so I really need to be able to work. Taking Bentyl (dicyclomine) for 3 yrs., which still does not allow me much of a variety of good foods or stop the intolorable distracting pain. Finally got off the proton pump inhibitor on the second try by replacing it with 1/2 of a 75 mg anti-acid/Ranitidine in the morning and sometimes the other half later in the day recently and do not need any of that some days now. The third excruciating year of IBS, I found the book "IBS the First Year" by Heather Van Vorous;started the diet and then the acacia soluble fiber that Bifidus probiotic like. Are you able to eat whole grain? For me it's like an allergic reaction whenever there is too much gas all at once in the evening post dinner after an hr. Colon spasms and then traps even more gas and then the upper GI pain starts up, then I take GasX. I've been using probiotics and enzymes for years, with purified water and "Concentrace" minerals added back in. Went without wheat and dairy (except yogurt) years ago, higher level gas problem when would go back on them;could just be the jump in fiber from the wheat and die off from the VERY high probiotic yogurt. Had a colonoscopy years ago when the pain was much worse. I believe I have a leaky gut for years now and is why I feel especially sickly from any level of reoccuring gas. Have AZ's AHCCCS INSURANCE, so am limited on that coverage and $ in general. Thanks for posting. Please let me know more about Enteragam, can't find the answers after searching in depth on it.
    Last edited: Jun 4, 2014
  14. sgcray

    sgcray

    Messages:
    3
    Likes:
    0
    Found more info: Jarrow brand over the counter (otc at Sprout's or Fresh Vitamins) is 35% immunoglobulins/CAP, -the highest I could find; around $25 for 2 caps/day (70% immuno.) for 60 days...forget buying it out of pocket from Enteragam at that ridiculous rip off price.....2/day of Jarrow gets you 70% and 10 mg of the lactoferrin part of the colostrom. You can take even more than the 2 caps/day, but I would start low...though I would think the immunoglobulin would balance out some of the die off from the lactoferrin killing down overgrowths in the intestine. Would the lactoferrin be like using an antibiotic to where you would have to replenish the good bacteria? Just to mention, when I was taking proton pump inhibitor it was around (and stating that it saved me) $70,! for my insurance through a prescription as opposed to only less than $20. otc. Hope this helps big time ;).
  15. sgcray

    sgcray

    Messages:
    3
    Likes:
    0
    Acacia fiber is great for my IBS-D and makes BMs come out sweeter! Heather's is a great company I've ordered before from;There acacia has been in my local store Fresh Vitamins for a long time with some of there other products.
  16. minkeygirl

    minkeygirl Senior Member

    Messages:
    2,006
    Likes:
    1,259
    Left Coast
    @sgcray Not sure where you are but you can get Heather's Tummy fiber cheaper at iHerb or Amazon subscribe and save has it for about $11.00 bucks.

    Heather claims it works for both IBS-C and D.

See more popular forum discussions.

Share This Page