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England: Neurological Alliance Survey on Neuro Patient Care from the NHS

Discussion in 'General ME/CFS News' started by Firestormm, Jul 9, 2014.

  1. Firestormm

    Firestormm Guest

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    This is a good opportunity I think anyway, to express your thoughts about care for ME by the NHS. I have done the survey and it didn't take that long - though I did have a lot to say - and aside from your experiences it also asks about time taken to diagnose, how many professionals you saw, if you saw any, etc. all that sort of thing.

    Yes. Myalgic Encephaloymyelitis is listed as a Neurological Condition and advocated for as such by the Neurological Alliance. I should know I worked with them in the past on a local project. And you'll find the right 'tick-box' in the survey for ME.

    Anyway, here it is:

    N.B. A reminder came up on Twitter today and I happened to notice it, hence why I am posting it now.
    Sasha, Esther12 and Valentijn like this.
  2. Firestormm

    Firestormm Guest

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    If you have had no experience of neurological services in England - and you live in England - then your experience is still valid and shouldn't prevent you completing the survey. ME is neurological and as such you should be referred etc.

    Similarly, if your experience of e.g. a neurological consultant was 'bad', or a GP, or a specialist service was felt to be 'not fit for purpose', say so, etc.

    These views are what they want to hear - alongside 'good' ones too...
  3. Sasha

    Sasha Fine, thank you

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    Firestormm likes this.

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