Anyone else out there currently taking hormonal birth control to try and shrink an endometrioma and/or endometriosis? I could use a buddy. Started back on the pill last night and am in some serious misery. ----------- My background, had a cyst rupture back in 2004 which led to a clinical diagnosis of endometriosis and was put on continuous oral contraceptives. Did fine on them, they prevented any more cysts or pain. Gradually developed ME/CFS while on the pill. ME/CFS became full blown in 2010. Quit pill in 2012 because I suspected it was making ME/CFS worse. Felt tons better off pill, and symptoms became cyclical. Then in 2013, the cyst ruptures returned, along with what appeared to be a pelvic infection. My ME/CFS symptoms became severe and I became bed bound except for bathroom. Went on amoxicillin which greatly improved both my pelvic symptoms and overall ME/CFS symptoms. Was able to walk a bit again. After 6 weeks of amoxicillin, my gut became damaged (likely leaky as well), and my ME/CFS became extremely severe. Fully bed bound, horrible neurological symptoms, severe brain agitation, and fatigue so bad I could barely reach my arm to my nightstand. My husband had to quit work to take full time care of me. Bed pans and feedings. And continued cyst ruptures on top of that. Equilibrant has been a miracle. After several months of declining in that state, Equilibrant stopped my decline, my fatigue improved, and I regained some muscle function. I can now use a bedside commode without becoming exhausted, and I can feed myself and use my arms slightly more (though am still significantly limited, especially when hormones are high). And it completely stopped my cyst ruptures and pelvic pain. I was only able to get up to about 3/8 pill of Equilibrant though due to the hormonal effects. At 1/2 pill, I was getting bad psychological PMS symptoms. Also after a couple months on it, I realized I had a large cyst growing, so was cautious about dose. So after seeing a gynecologist and a gynecological oncologist, and imaging, it was determined that I have 2 very large, probably non-cancerous cysts that are likely endometriomas. Because I'm a poor surgical candidate, they want to try more conservative treatment, starting with birth control. And that brings me to today, after a night of excruciating ovarian pain, nausea, a precarious mood state, and just generally feeling like crap. Having endometriosis with CFS really complicates things, but I can't help but wonder if mine are intertwined somehow. If I'm able to get some cyst tissue or fluid, I fully plan on sending to Dr. Chia for staining, and possibly also culturing. I forgot to mention that during my periods, I get very sick. Fever of 102, malaise, headache, cough, stuffy nose. It feels like a bad cold. When I mentioned to gynecologist, he said it was just inflammation. Which I understand--- but the stuffy nose and cough? I'm just really skeptical that's only inflammation. I've had endometriosis inflammation before without the stuffy nose and cough. It is different. Anyway, there is my cathartic and hormonal ramble If you have endometriosis too, feel free to chime in.