https://bos.etapestry.com/prod/view....16693328&key=415185ea244ea2b2bedeb0449b92682 I am posting the link to the latest newsletter from the End ME/CFS Project. For some reason, the link opens very slowly on my computer, but if I wait a few minutes, it opens and then it works fully. Please let me know if this link does not work and I will try to post it another way. In the newsletter are several great updates and stories including: - OMF is raising funds for a new study of the severely ill ME/CFS population who are homebound and bed-bound. This is extremely hopeful to me as this study believes that the biological abnormality that causes the disease would most likely be the strongest in those who are the sickest. The testing for this study will be so comprehensive that it will cost $65,000 per patient. The newsletter explains how you can donate to this study and other projects. - Updates on the scientific and advisory board - Updates and links to interview with Laura Hillenbrand - Information on how to donate to OMF using Amazon Smile and i-Give - Info on the KnoW M.E. Challenge started by Tom Jarrett and his family - An update from NIDA and Linda Tannenbaum - Other fundraising events, projects and ideas - A survey for ME/CFS Patients re: establishing Centers of Excellence in different cities and states in the U.S. (to assess what is out there and what is needed.) I took the survey and it only takes a few minutes to complete. You can also sign up to receive this newsletter in your e-mail. I am so proud of the work they are doing and I wish I was able to do more to help them.