I'm placing this note here because although I'm looking for a one or a few volunteers, it's not a patient advocacy project per se and it probably would most appeal to those people who are interested in research/ improving clinical care. If you have Internet access (I'm presuming you do if you're on this forum) and know the basics of entering information on an Excel spreadsheet, you can help increase the number and quality of researchers and clinicians interested in this illness. As many of you know, there aren't enough researchers/ clinicians in this field and the ones that are present are aging. We need new blood and here's something you can do about it. I'm expecting the project to take 30 minutes or so a week which can be done at one stretch or a few minutes here and there as you have time/ energy. It would be done remotely via Internet. However, this project is indefinite in its duration so while I don't expect people to commit indefinitely, a few months at a time would be great to minimize turnover. The rewards are both short-term (you get to keep up to date on the research and may get full-text to some articles) as well as long-term (as stated above). I may offer other benefits depending on how the project goes but this is not a paid position. If you're interested, drop me a private message. I will check back in a week or so. Thanks.