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Embargo broken: Bristol University Professor to discuss trial of quack cfs tx

Dx Revision Watch

Suzy Chapman Owner of Dx Revision Watch
Messages
3,061
Location
UK
PDF attached

PDF

Original article
Clinical and cost-effectiveness of the Lightning Process in addition to specialist medical care for paediatric chronic fatigue syndrome: randomised controlled trial
  1. Esther M Crawley1,
  2. Daisy M Gaunt2,3,
  3. Kirsty Garfield2,3,
  4. William Hollingworth2,
  5. Jonathan A C Sterne2,
  6. Lucy Beasant1,
  7. Simon M Collin1,
  8. Nicola Mills2,
  9. Alan A Montgomery3,4
 

Attachments

  • archdischild-2017-313375.full.pdf
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Forbin

Senior Member
Messages
966
Well, I can imagine something else that differentiates the treatment group from the control group - - the parents. The parents of the children in the trial group can be imagined to have higher hopes/expectations that their child will improve, due to the addition of LP to SMC. And guess what? Their children know this.


So... no pressure.
 

Dx Revision Watch

Suzy Chapman Owner of Dx Revision Watch
Messages
3,061
Location
UK
BBC

http://www.bbc.co.uk/news/health-41336384

Chronic fatigue therapy 'could help teenagers', study says

A training programme tested on children with mild or moderate chronic fatigue syndrome (CFS) can reduce fatigue and increase attendance at school, a small study from the University of Bristol suggests.

The Lightning Process, a type of brain therapy, was used alongside specialist medical care.

But ME charities said they did not recommend or endorse the process.

The NHS currently recommends behavioural and exercise therapy.

etc.

----------------------------------

Telegraph


http://www.telegraph.co.uk/science/2017/09/20/lightning-process-trains-brain-ward-tired-thoughts/

M.E. 'Lightning Process' trains the brain to ward off tired thoughts


By Henry Bodkin

20 September 2017 • 11:30pm

A controversial therapy for ME that involves intensively training the mind to ward off negative thoughts helps get children back to school, a new study has found.

Written off as “pseudoscience” by some experts, the Lightning Process also improves anxiety and physical function in teenagers, according to a trial by the University of Bristol.

etc.

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Dx Revision Watch

Suzy Chapman Owner of Dx Revision Watch
Messages
3,061
Location
UK

Woolie

Senior Member
Messages
3,263
In this clip, Phil promises to explain how dyslexia works, how dyslexic people's brains "work differently from other people's".

He starts by explaining what happens when those with dyslexia/learning difficulties write a letter of the alphabet:
"Their whole brain state, their neurology hits like a roadblock, it kind of judders to a halt. Often there can be fear, lack of confidence".

He then compares this to drawing a circle, and says "most of them are quite fine with that". He seems to think this surprising because after all, drawing and writing and not that different 'mechanically", there's not much difference between drawing a circle and an O. But according to Phil, a difference occurs because "they start to use different parts of their brain".

Phil: "The part related to drawing has much less pressure attached to it, its not something that tends to stress most people, because drawing is something you don't then to get marked or, people make judgements about you on.. whereas writing has a much different response... and we often see as I say a lot of stress, a lot of frustration, a lot of anger, a lot of upset. So all we got do then its to make sure the part of your brain that does the mechanical thing of drawing gets activated when you think about writing.

Its actually quite easy"
.


What you need to do - this "works for the vast majority of people":
"Think about something you're good at. What this will do, it actually wakes up that part of your brain that's creative, inspired confident, which is the part of the brain you need to be accessing when you're trying to do the writing stuff"

He then goes on to give a specific example of an exercise for kids how mirror transpose letters (e.g. their b's and d's face the wrong way). And says we can teach kids visual mnemonics to help remember which way the b and d face - he uses a picture of a bee of b and a picture of a dog for d.

My verdict

Novel useful information/advice: zero

The idea of using pictures to assist kids to learn letters - the only useful thing here - is not novel. Who is surprised to hear the writing induces stress in kids with dyslexia, but not drawing?

Psychobabble content: high

There are hints that dyslexia is all about stress and emotions and that by overcoming those, your kid won't be dyslexic any more.

Neurobabble content: though the roof!

Notice the gratuitous use of terms like brain and neurological, where you could easily have said the same thing without mentioning the brain at all. You could have talked about how we might have different emotional reactions to writing than we do to drawing. The brain parts is just window dressing. Of course we use a "different part of the brain" to draw letters and circles. That's mindnumbingly self-evident, and has no bearing on your recommended treatment - you just added it for effect!

Oh and for the encore - ppl with dyslexia are more creative, because they can think of lots of ways to spell a word, whereas those without dyslexia can only think of one!
 
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Forbin

Senior Member
Messages
966
According to Wikipedia and this book, it is only a common myth that closely associates "mirror writing" with dyslexia. Backward writing and letter order reversal is a common finding in all children under the age of 6.
In addition, most research suggests that letter reversals are only slightly more frequent, and in some studies no more frequent, among dyslexic than non-dyslexic children.

50 Great Myths of Popular Psychology: Shattering Widespread Misconceptions about Human Behavior
 

Mithriel

Senior Member
Messages
690
Location
Scotland
I was never dyslexic, but my ME has now caused a dyslexic problem for me. I cannot read all the new symbols in computing (I did maths at university so I know I was fine with symbols once.)

My OH has an email address of the kind daniel.craig@ gmail.co.uk. That full stop in the middle makes the whole thing just black out. It is weird, like a light switch going off.

Nothing to do with stress, everything to do with brain problems (and age!)

I wonder when LP is going to cure autism, that is a rich seam to mine...
 

Jenny TipsforME

Senior Member
Messages
1,184
Location
Bristol
What is meant by 'learning difficulties ' is not the same as children having difficulty with learning to read. It is a type of disability and often involves conditions like Global Developmental Delay. It isn't children getting anxious about school work :bang-head:

I used to teach young people who have learning difficulties so this is almost as frustrating as the ME stuff!
 

Esther12

Senior Member
Messages
13,774
Phil Parker on dyslexia and learning difficulties:

Would love to have your insight @Woolie

The way he takes people through b for bee, d for dog is rediculous. It looks transparently designed as a confidence trick to make people think that they've made progress and learnt something, when really they've just had distinguishing 'd' from 'b' made much easier in their little 'tests'.

Learning that 'the bee always goes in this direction' is not easier to remember than that 'b' always looks like 'b'.

Oh and for the encore - ppl with dyslexia are more creative, because they can think of lots of ways to spell a word, whereas those without dyslexia can only think of one!

What a postive and inspiring way of looking at it.
 

Daisymay

Senior Member
Messages
754
Some tweets from Phil Parker, unbelievable!

https://twitter.com/philparkerLP

Phil Parker‏ @philparkerLP 2h2 hours ago
1 It's is odd. People arguing against what they think the Lightning Process is, are actually stating positions we share.

Phil Parker‏ @philparkerLP 2h2 hours ago
2 The Lightning Process doesn't think psychological approaches are the answer for m.e

Phil Parker‏ @philparkerLP 2h2 hours ago
3The Lightning Process is not a psychological approach- it's a neuro- physiological approach

Phil Parker‏ @philparkerLP 2h2 hours ago
4 It considers M.e to be a physical illness

Phil Parker‏ @philparkerLP 2h2 hours ago
5 and that the changed physiology of m. e has to be addressed

Phil Parker‏ @philparkerLP 2h2 hours ago
6 That research is needed

Phil Parker‏ @philparkerLP 2h2 hours ago
7 That m.e needs to be taken seriously

Phil Parker‏ @philparkerLP 2h2 hours ago
8 That positive thinking or 'pushing' through it will not work

Phil Parker‏ @philparkerLP 2h2 hours ago
9 That blaming patients is never helpful and kindness and understanding is essential

Phil Parker‏ @philparkerLP 2h2 hours ago
M. E has enough mis- information that confuses those seeking help - facts and research have to be the way forward?
 

A.B.

Senior Member
Messages
3,780
I think that some of those tweets are fair responses to inaccurate criticism of LP. If critics get their details wrong it makes it much easier for quacks to present themselves as reasonable.

LP isn't worth the effort of writing up good critique. Anyone should be able to see that kids being told to hide their illness is wrong and that this is how LP "works". Of course Phil will say that's not true but it's true. It's not any less abusive when the person doing it smiles gently and uses a lot of positive and sciencey words.