Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
Discuss the article on the Forums.

Email perez!

Discussion in 'Action Alerts and Advocacy' started by dsdmom, Jul 6, 2010.

  1. dsdmom

    dsdmom Senior Member

    Messages:
    390
    Likes:
    48
    Today I wrote 2 emails: 1 to a very good family friend who is a journalist, covering the state house here in MA. I asked him if he had any contacts he could think of that may be interested in this story. I haven't heard back yet...we'll see.

    Then I was trying to come up with ways to reach as many people as possible and I emailed Perez Hilton - assuming most of you know who he is, if not www.perezhilton.com is one of the most popular gossip sites worldwide. His audience is massive. He also covers charities too as his good deed for the day. I explained the situation as concisely as I could and included a few links - emphasizing that there could be 20 million americans who have this today - and that it's most likely in the blood supply and probably sexually transmitted - which makes it more widespread than HIV. That the government is requiring the FDA/NIH to rewrite their study and that it needs to be published NOW.

    We'll see if I hear back from him - but if others want to encourage him to post about this, you can email him at perez@perezhilton.com. I know it's out there, but if we can educate millions - why not?
     
  2. JPV

    JPV ɹǝqɯǝɯ ɹoıuǝs

    Messages:
    858
    Likes:
    1,083
    His audience is composed of a bunch of idiotic 14 year old girls. Probably not the best choice.
     
  3. citybug

    citybug Senior Member

    Messages:
    522
    Likes:
    38
    NY
    Teenagers can get CFS too. I hope there is an antibody test soon to promote.
     
  4. dsdmom

    dsdmom Senior Member

    Messages:
    390
    Likes:
    48
    Although he certainly has 14 year olds as part of his demographic you are mistaken - because I'm part of his audience. And
    1) I'm not an idiot
    2) I'm not 14
    3) OK - I'll give you the last one - I am a girl.

    Last I checked XMRV did not discriminate - millions of people is millions of people. Idiots or not.
     

See more popular forum discussions.

Share This Page