The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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[ELLE] Anecdotes used to promote O'Sullivan, complain she's being trolled

Discussion in 'General ME/CFS News' started by Esther12, Aug 12, 2016.

  1. A.B.

    A.B. Senior Member

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    And guess what kind of diagnosis those other four doctors are going to make (and then likely never hear from the patient again).

    https://www.aarda.org/autoimmune-information/autoimmune-disease-in-women/

    According to this same organization, the symptoms in autoimmune diseases tend to fluctuate a lot, are often vague and unspecific in the beginning.

    Fluctuating symptoms can very easily mislead the doctor and patient into believing that some truly ineffective intervention (such as talking therapy) worked wonders when all that happened is that the disease has gone into remission for a while.
     
    Last edited: Aug 13, 2016
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  2. TiredSam

    TiredSam The wise nematode hibernates

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    I wonder if that's why such doctors think that their misdiagnosis rate is only 4% - because 96% of their patients never go back, and the doctor assumes it's because they've done a good job and everything must be fine now.
     
  3. worldbackwards

    worldbackwards A unique snowflake

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    Don't worry, it'll never be seen outside dentists' waiting rooms.
     
  4. Kalliope

    Kalliope Senior Member

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    I am afraid I found that rather misogynistic, or maybe I misunderstood something? Isn't there more than enough factual mistakes to discuss here without having to criticise a person's appearance?

    Edit: I do get that you are upset though over this. As am I.
     
    Last edited: Aug 14, 2016
  5. Snow Leopard

    Snow Leopard Hibernating

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    Agreed, comments like that are completely inappropriate...
     
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  6. slysaint

    slysaint Senior Member

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    Sorry, I was referring to her dress sense (Elle is primarily a fashion magazine). And yes anger did come into it (I didn't like the smug look on her face with her award winning book in her hands). Also, FYI I am female.

    EDIT: I've deleted the post.
     
    Last edited: Aug 14, 2016
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  7. Kalliope

    Kalliope Senior Member

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    Ah, I see :) Well, thank you for being so constructive about the feedback, I didn't want to pick up any fight. All good! :thumbsup:
     
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  8. eastcoast12

    eastcoast12 Senior Member

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    70% of patients who suffer psychsomatic illnesses are women

    For the life of me I can't wrap my head around how women don't flip out when they see shit like this. Elle magazine is a woman's magazine that's basically promoting the idea that women are nuts. That is crazy. I can't understand how educated women in the god damn field of medicine accept this and I'm so confused how a woman can write a book and promote these ideas in this day and age. To me it's fucking disgraceful.
    Oh wait I do understand. Money
     
  9. barbc56

    barbc56 Senior Member

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    That's actually a fact. But that doesn't mean it's being disrespectful Io women any more than a disease that affects more men means it's disrespectful to men.In a perfect world.

    However, you make a valid point as far as how men and women are perceived when they have a disease that's more prevelant in men than women.

    For the life of me, I can't think of a disease that affects more men than women other than a prostrate problem but that doesn't apply.

    EDIT I just realized in a sense it does apply if you are talking about gynecological problems vs.prostate problems.

    I remember going to the University health clinic in the seventies and had to have a procedure, which is now discredited, to help prevent frequent bladder infections.

    I don't remember the context or how it came up but he said the reason God made women with a shorter urethra and are more prone to UTIs, is a punishment for Eve giving Adam the apple in the garden of Eden. During the exam, you could hear someone coming out of the treatment room next door. He got up, opened the door to where we were and shouted loud enough for everyone in the treatment rooms, in the hallway and probable people in the waiting room to the guy walking down the hall he had seen before me, "You smell, take a bath!" Needless to say I didn't go back. If it had happened today, I would have reported him. But I was young. Sigh!
     
    Last edited: Aug 15, 2016
  10. eastcoast12

    eastcoast12 Senior Member

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    I'm not denying the fact that women have higher rates of certain diseases than men and visa versa. What I'm saying is I don't believe that the 70% of those women have a psychosomatic condition in the first place. I believe that there's a good chance those women have legitimate physiological/biological diseases that get misdiagnosed as psychsomatic because of the prevelence of the thinking that women are more succeptable to being crazy and doctors who are extremely quick to write off women's symptoms as psychological.
    I'm not a huge believer in psychosomatic diagnoses. Sure, when you get nervous or something your body reacts to it but I don't buy a majority of the psychosomatic labels. It's the easy/lazy/unethical way out. Just look at how many women on this site who have been told they need to get laid more or they need to find a husband or some other bullshit to try an explain away their symptoms. I think it's Stone Age thinking and a legitimate injustice.
     
  11. GreyOwl

    GreyOwl Dx: strong belief system, avoidance, hypervigilant

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    More women suffer more from autoimmune disease than men (I don't know the stats, don't have the refs on hand). Autoimmune disease, especially in its early stages, is commonly dismissed as psychosomatic or psychological (again, refs not hard to find). Psychosomatic explanations are a dead-end which harms men and women equally.
     
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  12. barbc56

    barbc56 Senior Member

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    I may not have been clear. I absolutely agree with what you wrote. It's just such a sad state of affairs as are a lot of things about this DD.:bang-head:
     
    Kati likes this.

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