1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
August 8th - What is the one thing about suffering with severe ME that the world needs to know?
Andrew Gladman brings our coverage of the Understanding & Remembrance Day for Severe ME, airing the voice of patients ...
Discuss the article on the Forums.

Electrode Implants in Back -Does Anybody Have Them? What has been your experience?

Discussion in 'General Treatment' started by Mya Symons, Mar 3, 2012.

  1. Mya Symons

    Mya Symons Mya Symons

    Messages:
    839
    Likes:
    167
    Wyoming
    I have no idea what category this subject would go under. Sorry if it is posted in the wrong place.

    After several years of having CFS and FMS, my husband's bladder has become paralyzed (although no one is sure what caused the problem). The urologist ran some tests that found it is a nerve paralysis problem. He wants to do surgery and run electrodes from his back to his bladder. This is a very serious surgery and I think we need to find out much more about it before he makes a decision.

    I am having a really hard time trusting this doctor. You would think he would suggest sending my husband to a neurologist or check for viruses that could have caused the problem. He hasn't suggested either. Wouldn't this be the next logical step?

    Has anyone else ever experienced some type of nerve paralysis and had electrodes implanted in their back? If so, can you let me know what your experience has been? Please and thank you.
  2. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

    Messages:
    3,953
    Likes:
    805
    Concord, NH
  3. Mya Symons

    Mya Symons Mya Symons

    Messages:
    839
    Likes:
    167
    Wyoming
    He doesn't feel good about this either. But he has had the same experiences with doctors that most of us have had. My gut feeling is that something is wrong. It is usually when I don't pay attention to this that something negative happens. So I guess my intuition is good. I feel like he needs to see a neurologist to see if the problem isn't bigger than his bladder. We share one doctor so I think I am going to go in and ask for a referral for him (My husband does the guy thing and likes to act as if nothing. Maybe that is a woman thing to?)

    I think something else is going on with both of us that they missed. My nerve twitching has now moved up to my face, which is concerning. I have also had bad back pain lately running up my spine. I just wish I could find the right doctor who would take notice.

See more popular forum discussions.

Share This Page