1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Nitric oxide and its possible implication in ME/CFS (Part 1 of 2)
Andrew Gladman explores the current and historic hypotheses relating to nitric oxide problems in ME/CFS. Part 1 of a 2-part series puts nitric oxide under the microscope and explores what it is, what it does and why it is so frequently discussed in the world of ME/CFS. Part 1 focuses...
Discuss the article on the Forums.

Ehlers-Danlos anybody? (Hypermobility)

Discussion in 'Skeleton, Skin, Muscles, Hair, Teeth, and Nails' started by Sushi, Jul 28, 2009.

  1. Uno

    Uno Senior Member

    Messages:
    106
    Likes:
    27
    Brighton, United Kingdom
    Professor Graham didn't believe in M.E so I didn't push the subject - he said all my symptoms of fatigue and pain were down to the EDS. What's prolotherapy and Hyawhatsy? Not heard of them Sara x
    warriorseekspeace likes this.
  2. sleepy237

    sleepy237 Senior Member

    Messages:
    246
    Likes:
    12
    Hell
    I have hypermobility syndrome also but EDS was never mentioned by rheumatology in diagnosing in 2006. I am aware that type 3 EDS may well be HMS benign type but its never been mentioned, wish I could see P. Graham but too far to travel for me im other end of country. @ Sarah Idk what Hyaroulonic Acid is but will sure look into it thank you.
  3. Esther12

    Esther12 Senior Member

    Messages:
    5,176
    Likes:
    5,169
    Uno. I see. Ta.

    @ sleepy: There was a clinic in Leeds, but I think it's now gone. One was planned for manchester... not sure what happened.
  4. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    6,607
    Likes:
    5,398
    Albuquerque
    I had prolotherapy in the ligaments around my knees and it helped moderately but hurt like hell! They inject sugar and lidocaine (as I remember). The sugar is just an irritant that makes the ligament respond by growing stronger. The Hyaroulonic Acid is a supplement. That one didn't help me. What helps me the most is pilates.

    Sushi
    warriorseekspeace likes this.
  5. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

    Messages:
    3,953
    Likes:
    805
    Concord, NH
    I am looking to have prolotherapy done, amazing how many in the medical field don't know about it. I mentioned it to a few people that were giving me PT.

    I had a labral tear that was fixed surgically but I hurt myself while healing(fog and fatigue), so I never felt any better, perhaps worse after the surgery. I also did not know that I had Fibro at the time, not sure if that really matters, but I am under the impression that it does?!

    Sushi, you make this sound painful! Or perhaps it is because of where you had it, in your knee? I had a bunch 5 or 6 trigger point injections done last Wednsday, seems to have helped my back pain, but not the hip! Want to get back on my bike a little more this year, so hope to get the hip in better shape, still need to get a HRM so I don't over do it also! Cannot afford PEM and missing work!!

    GG
  6. TinyT

    TinyT Senior Member

    Messages:
    149
    Likes:
    1
    Australia
    My Brighton score is at least 5. I also have abnormal skin signs, arthralgia, history of soft tissue rheumatism, & myopia. Used to be a dancer and was/is very hypermobile!

    Any tips on getting this diagnosed?

    Ah, I also have moderate-severe POTS

See more popular forum discussions.

Share This Page