The power and pitfalls of omics part 2: epigenomics, transcriptomics and ME/CFS
Simon McGrath concludes his blog about the remarkable Prof George Davey Smith's smart ideas for understanding diseases, which may soon be applied to ME/CFS.
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Edward Shorter to give talk on CFS at NIH

Discussion in 'General ME/CFS News' started by worldbackwards, Nov 3, 2016.

  1. worldbackwards

    worldbackwards A unique snowflake

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    Earth


    Good god.
     
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  2. Denise

    Denise Senior Member

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    Last edited: Nov 3, 2016
    ebethc, Jennifer J, Valentijn and 5 others like this.
  3. BurnA

    BurnA Senior Member

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    OMG just when you thought things couldn't get worse.

    Now what's the plan?
     
  4. Nielk

    Nielk

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    More evidence of how "serious"NIH is now. Did Walitt invite him?
     
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  5. halcyon

    halcyon Senior Member

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    This demands an explanation from the NIH. Do they routinely invite AIDS deniers to speak at the NIH? Are they not aware that Edward Shorter has and continues to engage in hate speech against ME patients?
     
  6. Cheshire

    Cheshire Senior Member

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    Wrong conference link, sorry
     
    Last edited: Nov 3, 2016
  7. Denise

    Denise Senior Member

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    Cheshire likes this.
  8. Cheshire

    Cheshire Senior Member

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    Yes you're right. Sorry (exact same day 6 years ago...) :confused:
     
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  9. Denise

    Denise Senior Member

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    strange coincidence.
     
    Cheshire likes this.
  10. Nielk

    Nielk

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    It says he was invited by the ME/CFS interest group which probably means the intramural Walitt group. They are the ones inviting "experts" to educate them on ME/CFS.
     
  11. Denise

    Denise Senior Member

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    The ME/cfs Interest Group has invited people who (from their reputations) gave helpful, thorough presentations.
    ( I don't know if when this page was last updated - it lists the most recent presentation as September)
    "Speakers to date include:

    June 15th, 2016: Anthony Komaroff, M.D.: An Overview of Chronic Fatigue Syndrome (ME/CFS)

    July 18th, 2016: Leonard Jason, Ph.D.: Diagnostic Challenges and Case Definitions for CFS and ME

    August 24th, 2016: Daniel Peterson, M.D.: CFS/ME: Perspectives from a Local Epidemic 1984-2016

    September 21st, 2016: Staci Stevens, M.A. and Mark Van Ness, Ph.D.: Cardiopulmonary Exercise Testing in ME/CFS"

    Where and how Shorter fits in with these presenters is beyond me...
     
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  12. Denise

    Denise Senior Member

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    fwiw - I have emailed NIH about this unusual presentation re a physiological disease. I hope I get a reasonable response (and soon)!
     
  13. viggster

    viggster Senior Member

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    This is discouraging, but after the NIH people have heard from Komaroff, Lenny Jason, Staci Stevens, and Dan Peterson, it's hard to see Shorter convincing them of anything other than his own backwardness.
     
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  14. BurnA

    BurnA Senior Member

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    You'd certainly like to think so.
    I think it still warrants an explanation though.
    This guy should not be considered in the same league as the other names - it's disrespectful to them and to patients.
     
  15. Mary

    Mary Senior Member

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    This is horrific - it's beyond disrespectful and backwardness - The "toned-down" version is very bad, the original leaves me speechless -- I'm going to e-mail the NIH too - does anyone know who to contact?

    eta: I just saw a "contact" link here: http://mecfs.ctss.nih.gov/contact.html
     
  16. Wildcat

    Wildcat

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  17. Forbin

    Forbin Senior Member

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    Get to know Edward Shorter.

     
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  18. Neunistiva

    Neunistiva Senior Member

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  19. TiredSam

    TiredSam The wise nematode hibernates

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    Absolutely hysterical, literally laughed out loud. Couldn't even parody that guy.
     
  20. Mary

    Mary Senior Member

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    I'd be happy to! Yes, very good suggestion. I'm going to wait until tomorrow, when I have more energy; if I did anything right now I know I would start ranting. But this is inexcusable - there's no excuse, except for Walitt ...
     
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