The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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EDS & Small Fiber Neuropathy

Discussion in 'General ME/CFS News' started by Belbyr, Mar 2, 2017.

  1. Belbyr

    Belbyr

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    jodie100 and Old Bones like this.
  2. Mohawk1995

    Mohawk1995 Senior Member

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    Very interesting report indeed! Especially that while Nerve Conduction studies of large nerves (standard test for neuropathies) were all negative in these subjects, ALL of them were found to have small fiber neuropathies. As a physical therapist working for years on patients with "nerve" complaints including pain, tingling, crawling, numbness and other parasthesias, it was always interesting to see the number of patients who had negative Nerve Conduction studies. Worst cases were those who were told the "nerves are fine". They most likely were not fine.

    As it relates to this disease (which has an unusual presentation - sound familiar!) it is interesting that EDS patients with so many musculoskeletal issues have such consistent results to nerve biopsies. Underscores to me the importance of continuing to "look upstream" which leads to the nervous system both peripheral and central (the two are inseparable).
     
    *GG* likes this.
  3. *GG*

    *GG* Senior Member

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    Concord, NH
    I was diagnosed with small fiber polyneuropathy by Dr. Oaklander in Boston, MA.

    Wonder if I can find the paperwork on that?

    GG
     

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