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Eds/pots and progesterone

Discussion in 'Connective Tissue Disorders/Ehlers-Danlos Syndrome' started by RK176, Nov 1, 2016.

  1. RK176

    RK176

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    Hi,

    I have been going to the doctors for what seems my whole life and always told there was nothing wrong. I was diagnosed with pcos at one point and then told later down line that I didn't have it. Despite having reasonable fitness, I am always out of breath walking yet am slim, only 27 and have never smoked.A chiropractor pointed out that I have hypermobility but I never put it together with my symptoms until now. I had a really bad bout of dizziness and felt drunk so thought it might be my blood sugar levels so I decided to start monitoring my blood pressure, temp, heart rate and sugar levels. My sugar levels were obscure but there was not enough evidence for diabetes. My heart rate however would jump 30, 40 beats from just standing. I monitored this for a few weeks and noticed my heart rate stopped jumping when I was meant to have high progesterone in my menstrual cycle and then started jumping as soon as it was meant to drop. My temp is also pretty low

    I believe I have Eds with pots and possibly mitral valve prolapse but has anyone had any experience with fluctuations due to hormones?

    Thanks
     
  2. L Y

    L Y

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    Yes, hormonal changes can (will?) affect POTS. Teenagers with all their wonderful raging hormones will have problems. Some practical advice in this lecture by Dr. Jeffery Boris.
     
  3. lnester7

    lnester7 Seven

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    USA
    What I understand for a person >18yold 30bpm increase in HR at standing is POTs. See the you tube video POTs 101 or dysautonomia 101 can't remember which
     
  4. L Y

    L Y

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    There's the simple POTS test which is rise with the blood pressure cuff attached. Then there's the 5 minute supine 10 minute standing with finger attached to heart monitor...not all cardiologists know how to do the latter test.
     

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