Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
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East Coast Doctors

Discussion in 'ME/CFS Doctors' started by jpcv, Dec 25, 2017.

  1. jpcv

    jpcv Senior Member

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    SE coast, Brazil
    Hi folks, I'm planning to travel to USA to see some physician who has experience in treating patients with ME, probably in the first months of next year, the East Coast being the easiest place to go.
    Any sugestions of Doctors ? Susan Levine in NY or Nancy Klimas in Miami ?
    Anyone gere treating with them?
    Thank you.
     
  2. Vineyard1

    Vineyard1

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    Dr. Laura Black at Hunter Hopkins in Charlotte is excellent.
     
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  3. Joh

    Joh Inactivist

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    Germany
    Good luck @jpcv and I'd be very interested to hear about your experience, if you'd like to share. Save travels! I have the same problem, that the east coast of the US would be much more comfortable to reach from Germany, but I think most ME/CFS specialists are at the west coast.
     
  4. nryanh94

    nryanh94

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    Did she decide to stay on with Lapp retiring?
     
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  5. Sushi

    Sushi Moderation Resource Albuquerque

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    Albuquerque
    I saw on Facebook that Dr. Lapp is training a replacement--but don't know more than that.
     
  6. Vineyard1

    Vineyard1

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    When I called a few weeks ago.she had decided to stay on.
     
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  7. nryanh94

    nryanh94

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    For anyone who has been to Hunter Hopkins, do they offer antivirals for people who test positive in EBV/HHV6? What is their treatment approach outside of “staying within the energy enevelope”?
     
  8. Vineyard1

    Vineyard1

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    They do tilt table testing and treatment, if indicated.
    They do anti virals, if indicated
    Blood work inclusive of immune testing-recommended IVIG for me
    Overall recommendations for.mitochondrial support, inflammation etc.
    Offer IV support ,when traveling distance, if indicated, during visit as they know it can cause hypovolemia, dehydration, weakness etc.
     
    Pink and nryanh94 like this.

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