1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
Discuss the article on the Forums.

Ears ringing?

Discussion in 'Neurological/Neuro-sensory' started by SteveRacer, Jul 13, 2010.

  1. SteveRacer

    SteveRacer Demon on Wheels

    Messages:
    25
    Likes:
    0
    Los Angeles, CA
    I don't realize it often during the noise of the day but almost any time it is quiet I notice my ears are mildly ringing. It seems to be very often they are doing this. Anyone else have this?
     
  2. Mya Symons

    Mya Symons Mya Symons

    Messages:
    859
    Likes:
    179
    Wyoming
    I just replied but it isn't showing, so this might come up twice. I was just going to ask about this when I saw your post. I also hear a dull ringing sound sometimes and at other times it sounds like rushing. I take a lot of meds that up Seritonin and I am wondering if that might cause the rushing or ringing sound or if it is another symptom?
     
  3. Tembo

    Tembo Australia

    Messages:
    63
    Likes:
    10
    I suffer from ringing ears and I also get a kind of flapping sound ( like bird wings if that makes sense) my chiropractor says my neck it out when this happens and I always get immediate relief after an adjustment. Not sure if that would help you but its what works for me:)
     
  4. Wonko

    Wonko Senior Member

    Messages:
    627
    Likes:
    104
    England
    yes - most of the time - variable in volume and type but fairly consistent as to it being there
     
  5. Mya Symons

    Mya Symons Mya Symons

    Messages:
    859
    Likes:
    179
    Wyoming
    Speaking (or in this case writing) of hearing things, I just remembered something so weird, that I had to mention it. My husband and I both have FMS and CFS. When my husband laid down to go to bed at night he was hearing music. After a while, I started hearing music too (it was very quiet and hard to hear, but it was there). At the time we had been seeing a doctor who specialized in Fibromyalgia and only saw fibromyalgia and CFS patients. He sad that many of his patients had been reporting the same symptom--hearing music when they lie down. I am guessing this must have something to do with the nerve problems. Weird, right?
     
  6. liverock

    liverock Senior Member

    Messages:
    522
    Likes:
    444
    UK
    BETAHISTINE DIHYDROCHLORIDE or Serc as it is sometimes called, is a drug which sometimes helps with tinnitus or ringing in the ears.

    It is normally prescribed for people with vertigo which a lot of CFSers suffer from.
     
  7. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

    Messages:
    4,113
    Likes:
    960
    Concord, NH
    Yup, and this dated pre-illness. I sleep with a sound machine and CPAP, usuallly like some sound around, not so noticeable.
     
  8. Stone

    Stone Senior Member

    Messages:
    371
    Likes:
    6
    NC
    My ears started ringing at the moment of my 'sudden onset' of CFS on September 14, 1995 and haven't stopped since. Once in a while it changes pitch, quality or volume but it never goes away. Sometimes it sounds like keys jingling, other times like the buzzing of fluorescent lights. Also, I do kind of hear music sometimes when I'm laying down lately, but it's not exactly like music, it's more like a cell phone ring tone that's muffled as if it were ringing under a pillow.
     
  9. Lynn

    Lynn Senior Member

    Messages:
    303
    Likes:
    54
    I hear music often when laying down. The range of genres is incredible, big band, jazz, show tunes. I think it is about my hyper-sensitive brain making music out of ambient sounds (heater, air conditioner, just general noise). I have been experiencing for years. Today when it happens, I just let it play and think things like how interesting my brain can be.

    Lynn
     
  10. bigmama2

    bigmama2

    Messages:
    52
    Likes:
    3
    FL, PA
    i dont generally have a prob w ears ringing. but i do occas hear a phone ring sound when it really didnt ring. or a doorbell ring sound. and yes i have heard the music while laying down. that is odd. and yes i must have a sound machine for good white noise when i sleep.

    my bro who has cfs worse than mine- he has frequent ear noise problems- and it exactly correlates with how his cfs is doing. after he overdoes it and goes into a flare- his hears a constand underwater wooshing sound in his ears. (or something like that). then as time passes and he improves- you guessed it- the sound gets less or goes away. he is 100% sure it is due to cfs but of course we cant figure out exactly WHY this happens. he wonders if it has to do w brain inflammation or someting.
     
  11. Mark K

    Mark K

    Messages:
    26
    Likes:
    0
    california
    Stone same here identical as you said.
    My startedright after taking high dose ABx Levaqen which only made symptoms worst
    Its either some damage to ear drum nerve by virus (herpes) or due to ABx ..hopefully stem cell take care of this and other issues

     
  12. anciendaze

    anciendaze Senior Member

    Messages:
    903
    Likes:
    1,047
    My tinnitus began 18 years ago, during a flare up caused by an infection, and has not stopped since. It tends to be a high-pitched sound with several frequencies, like the noise from CRT monitors. It definitely gets worse when other symptoms get worse.

    I have also had the impression of listening to music when none was around, but I don't know if that is as uncommon as many people think. The brain often tries to make sense of random inputs, even in people without known nerve damage. This is particularly true in half-waking states called hypnogogia. I suspect we spend more time in these in-between states than others, because this goes along with the sleep problems often reported. The weird images that I see in these situations are not hallucinations, because I can tell they are internal, not external sensory inputs, but they are just about impossible to explain. Even if I were a graphic artist, (which I emphatically am not,) I don't think I could visualize novel images at anything like the rate these appear and morph into others.
     
  13. ixchelkali

    ixchelkali Senior Member

    Messages:
    1,105
    Likes:
    266
    Long Beach, CA
    Neurologist Oliver Sacks ("The Man Who Mistook His Wife for a Hat") has writen about organically based music hallucinations. I think it was temporal lobe damage, but I may not be remembering correctly. He ended up writing a whole book about music and the brain.
     
  14. Mark K

    Mark K

    Messages:
    26
    Likes:
    0
    california
    beside ringing ears anyone with sensitivities to noises, sounds, gardnres are worst with machinery, also if someone chew like nutts or even going to restaurants is almost imposible seem overload is too much, thnx
     
  15. TomStones

    TomStones

    Messages:
    20
    Likes:
    1
    I've had tinnitus for varying lengths of time since the onset of M.E/cfs 20 years ago. It doesn't really bother me on it's own but it can mess about with my ability to get to sleep so that becomes a problem.

    I used to entertain visitors by pretending to run my hand over my head, as though i was rubbing the rim of a half -filled glass, and singing/mouthing the same note that was ringing in my ear. What a bizare sensation that was, to be in tune with your tinnitus. Sadly i can no longer reach the high notes due to 20 years of sore throats.
     
  16. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

    Messages:
    4,113
    Likes:
    960
    Concord, NH
     
  17. Alesh

    Alesh Senior Member

    Messages:
    176
    Likes:
    1
    Czech Republic, EU
    My tinnitus started sometimes shortly after the sudden onset of my ME/CFS more than 12 years ago. It isn't like a definite tone with a definite pitch, it is more like a hissing or an acoustic noise felt subjectively somewhere in the head. It never dissapears completely. The first years it was so strong I had to use headphones and listen to some music if I wanted to read. Now I hear it only when I am in a silent place.
     

See more popular forum discussions.

Share This Page