Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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e-petition: Make public all documents relating to M.E. and CFS

Discussion in 'Action Alerts and Advocacy' started by drjohn, Aug 23, 2011.

  1. drjohn

    drjohn Senior Member

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    e-petition: Make public all documents relating to Myalgic Encephalomyelitis (M.E.) and Chronic Fatigue Syndrome (CFS) - closing Date 23 February 2012

    PERMISSION TO FORWARD AND RE-POST WIDELY ON LINE, SOCIAL NETWORKING SITES AND USE IN NEWSLETTERS

    [Note: Please delete any of our e-mail addresses ending @mefreeforall.org, which will expire shortly and amend your address book as follows: drjohngreensmith@mecommunitytrust.org for e-mails which ONLY drjohn can deal with and info@mecommunitytrust.org, which will be checked regularly by drjohn and the team. Family and personal friends also have personal e-mail addresses for matters other than M.E., which have not changed. Thanks.]

    The British Government has introduced a new system of e-petitions, whereby petitions achieving more than 100,000 signatures will be eligible for debate in the House of Commons.

    A test precedent has been set with the target being exceeded by signatories to a petition calling for full disclosure of all government documents relating to the Hillsborough football stadium disaster of April 1989.

    Please note: To sign you must be a citizen of, or usually resident in, the UK. We hope, however, that the M.E. Community worldwide will observe, learn from the experience and, perhaps, replicate the initiative in their own country. We may also raise a similar petition on a site which does accept signatories from all countries after we have seen the outcome of this one in the UK.

    The short title is:

    Make public all documents relating to Myalgic Encephalomyelitis (M.E.) and Chronic Fatigue Syndrome (CFS)

    The e-petition detail is:

    We the undersigned request that all information relating to M.E. (Myalgic Encephalomyelitis) and CFS (Chronic Fatigue Syndrome), including correspondence with the medical profession (Ref: BN 141/1), held in the National Archives, Kew, UK, as a closed document and not available for public access, after 78 years, until 2072, is made freely available.

    It is believed that such revelation may yield clues to a better understanding of a physical cause or underlying disease process of a discrete neurological illness, Myalgic Encephalomyelitis, unjustifiably bundled within the collective diagnosis CFS or taken to be synonymous with it This might, in turn, lead to effective treatment and hopefully a cure or significant recovery for this dreadfully debilitating illness, which affects millions of people worldwide.

    The closing date is: 23 February 2012.

    The target is more than 100,000 signatures. Please do sign and encourage others to sign by forwarding the link http://epetitions.direct.gov.uk/petitions/14242 and short lik e-petition: Make public all documents relating to Myalgic Encephalomyelitis (M.E.) and Chronic Fatigue Syndrome (CFS) http://tinyurl.com/3dcdenf as widely as possible to increase our chances of hitting the target. Do send the link to our fellow sufferers abroad, even though they are not eligible to sign.

    Footnote: You may be aware that Dr John Greensmith is currently suffering a major relapse of M.E. and having to take bed rest. Much of his correspondence is prepared by Trust volunteers for him to finally approve or execute. We welcome more volunteers, from any part of the world, to help not only with this petition and the publicity it will generate but also other projects. Those with existing skills to offer, prepared to learn and work remotely are invited to write with their offers to his address, drjohngreensmith@mecommunitytrust.org or to info@mecommunitytrust.org

    Best wishes
    John
    drjohngreensmith@mecommunitytrust.org
    Dr John H Greensmith
    ME Community Trust.org
     
  2. Enid

    Enid Senior Member

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    UK
    Thanks drjohn - all done and will send our local group.
     
  3. *GG*

    *GG* Senior Member

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    Concord, NH
    Good luck with this, to bad you have to be a UK resident.

    GG
     

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