soxfan
Senior Member
- Messages
- 995
- Location
- North Carolina
I am trying to figure out if I have Dysautonomia....and have been doing alot of reading on this. From what I have read...you don't have to have POTS as there are different forms of dysautonomia. I know I don't have POTS as I had the tilt test last summer and wore a Holter montor as well.
But I have so many symptoms of Dysautonomia that I am thinking this could be my major problem. I have had most of the symptoms listed off and on for years but the ones that are constant are the chronic fatigue...unrefreshing sleep...heart palps really intense. By heart palps I mean I am accutely aware of my heart beat and it feels like it pounds out of my chest (mostly at night). I sometimes think it is fast but in reality it beats around 50-55 while in bed at night.
I also have diminished mental stamina as when I work it exhausts me terribly. I get very mentally overstimulated by the time I get home which leads to an awful physical exhaustion where my body pounds with fatigue.
I am able to do much more physically than most here which I am very grateful for but the fatigue is the disabling factor for me. If not for that I could lead a pretty normal life. My other constant symptom is neuropathic pain and muscle twitching in my calf which I have had for years. That also never goes away.
I also will overheat to the point that my glasses will fog up...I have sleep issues...blurred vision at times...chills at night...feeling off balance...easily over stimulated...feeling full quickly...feeling wired...I could go on as there are many more.
My doctor wants to keep treating me with abx as he feels these problems are from Bartonella but I don't feel as though that will do much good. I was just tested again but don't have the results.
I feel as though I am at the very end of my rope here and hoping someone has some imput. There are days when I am so tired by 2pm I am basically done and I haven't even done anything! But other days I can go shopping for hours and feel somewhat okay although tired. Also I can exercise pretty much everyday inspite of the fatigue. I know that is strange and I think so too but even if I feel very tired I can get on the treadmill and walk.
As everyone here knows it is very depressing and makes me anxious not knowing how I am going to feel from one day to the next. I have never been offically diagnosed with CFS as I don't fit into the "criteria"....help anyone?
But I have so many symptoms of Dysautonomia that I am thinking this could be my major problem. I have had most of the symptoms listed off and on for years but the ones that are constant are the chronic fatigue...unrefreshing sleep...heart palps really intense. By heart palps I mean I am accutely aware of my heart beat and it feels like it pounds out of my chest (mostly at night). I sometimes think it is fast but in reality it beats around 50-55 while in bed at night.
I also have diminished mental stamina as when I work it exhausts me terribly. I get very mentally overstimulated by the time I get home which leads to an awful physical exhaustion where my body pounds with fatigue.
I am able to do much more physically than most here which I am very grateful for but the fatigue is the disabling factor for me. If not for that I could lead a pretty normal life. My other constant symptom is neuropathic pain and muscle twitching in my calf which I have had for years. That also never goes away.
I also will overheat to the point that my glasses will fog up...I have sleep issues...blurred vision at times...chills at night...feeling off balance...easily over stimulated...feeling full quickly...feeling wired...I could go on as there are many more.
My doctor wants to keep treating me with abx as he feels these problems are from Bartonella but I don't feel as though that will do much good. I was just tested again but don't have the results.
I feel as though I am at the very end of my rope here and hoping someone has some imput. There are days when I am so tired by 2pm I am basically done and I haven't even done anything! But other days I can go shopping for hours and feel somewhat okay although tired. Also I can exercise pretty much everyday inspite of the fatigue. I know that is strange and I think so too but even if I feel very tired I can get on the treadmill and walk.
As everyone here knows it is very depressing and makes me anxious not knowing how I am going to feel from one day to the next. I have never been offically diagnosed with CFS as I don't fit into the "criteria"....help anyone?