New Atmosphere, New Vision: Gibson and Whittemore Kick Off Invest in ME Conference 2016
Mark Berry reports on Dr. Gibson's introduction and Dr. Whittemore's keynote speech, at the 11th Invest in ME International ME Conference in London.
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Dutch Health Council

Discussion in 'General ME/CFS News' started by Lou Corsius, Sep 23, 2017.

  1. Lou Corsius

    Lou Corsius

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    Dutch Health Council think it is needed to add quality to the IOM report on MECFS
     
    Last edited: Sep 24, 2017
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  2. Lou Corsius

    Lou Corsius

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    Dutch Health Council misinformed parliament in 2016 about IOM. One can buy a membership there. Less scrutiny.
     
    Last edited: Sep 24, 2017
    Starlight, AndyPR, Valentijn and 8 others like this.
  3. A.B.

    A.B. Senior Member

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    It's a real conspiracy against patients fighting for their lives.
     
  4. Joh

    Joh Inactivist

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    Germany
    Thanks for posting the videos @Lou Corsius. Shocking! The second one sounds like stand-up comedy!!
     
  5. Lou Corsius

    Lou Corsius

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    That is how it works overhere. The CBT/GET scientists are on all strategic positions.
     
    Starlight, TrixieStix, AndyPR and 3 others like this.
  6. Grigor

    Grigor Senior Member

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    The guy next to him seems to be very nervous and impressed by the bullshit van Gool is claiming. Blegh
     
  7. Lou Corsius

    Lou Corsius

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    Last edited: Sep 23, 2017
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  8. alex3619

    alex3619 Senior Member

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    The IOM report was the only large scale evidence based report on ME and CFS, ever. I would like to see them do better. Genuinely. Sadly I have zero faith in their capacity to even do half as well. My message to them is please prove me wrong.

    There are lots of things wrong with the IOM report, but its still the best we have in evidence based medicine.

    Its also worth nothing that the AHRQ now has the view that there is no evidence that CBT or GET work in ME.

    The first two Cochrane reviews had close involvement of some PACE trial authors, and appears to have failed to properly assess the evidence. "Cochrane" is not a rubber stamp for quality. Every single review can and should be considered critically. Without that the Cochrane principles are for nothing.

    By my reading of the EBM rankings I would rate the entire CBT/GET claim at about anecdotal, due to downgrading all the way to the bottom over failure after failure in methodology. In other words, its just opinion. Many reviewers seem to forget that failures in a study should lead to downgrading. The failures in this area seem to be both entrenched and pervasive. They are also mostly blatantly obvious, and yet author after author miss them, time and again.
     
    Last edited: Sep 24, 2017
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