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Duration of fatigue

Discussion in 'Post-Exertional Malaise, Fatigue, and Crashes' started by sming, Jul 25, 2014.

  1. Dr.Patient

    Dr.Patient There is no kinship like the one we share!

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    Do not do any physically exerting thing to your body. This is one thing that will keep you from getting worse.
     
  2. minkeygirl

    minkeygirl Narcissism = lack of self awareness

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    Nice thought but impossible unless you have someone to take care of your every need. For some the simplest task is hard. Mental exertion is just as exhausting as physical exertion.

    Anyone who has to work like @sming or live has to exert themselves.
     
    sming and Dr.Patient like this.
  3. optimist

    optimist Senior Member

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    I did not know that! I am starting my fourth year now. My GP has nothing to offer me except waiting and hoping it will go over. Only heard of four ME specialists in Norway, and they live far away from where I am... So, I guess you guys be my "doctors" that I'll consult then :)
     
    MeSci and sming like this.
  4. Scarecrow

    Scarecrow Senior Member

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    Both good points @minkeygirl but I suspect that sming is blaming himself for not trying hard enough or not being able to pull himself together or for having a psychosomatic illness. In other words, believing the crap that the medical profession and society in general fling at those who are 'tired all the time'. Been there.

    It's true that you don't want a disease that has no treatment but if that's what it is, that's what it is.

    @sming, have you had basic blood work to rule out some of the more common illnesses with fatigue as a symptom?
     
    justy, Mij, WillowJ and 2 others like this.
  5. Scarecrow

    Scarecrow Senior Member

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    oops! created two posts
     
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  6. minkeygirl

    minkeygirl Narcissism = lack of self awareness

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    @Scarecrow, I understand, it just makes no sense to me. If you don't feel good you don't feel good If @sming had pneumonia would he blame himself, or adrenal disease? Even if it was psychosomatic, and I'm not saying it is, there is still an illness involved there.
     
  7. Scarecrow

    Scarecrow Senior Member

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    @minkeygirl, I suppose that the difference with pneumonia is that it's a 'valid' disease that any doctor would recognise. Fatigue on the other hand, without evidence of a 'valid' disease, is a red flag for psychological problems as far as a great deal of the medical profession is concerned.

    Personally I no longer believe in the concept of psychosomatic illness. I used to think I had one, then I thought 'I'm going to beat this thing' and then look what happened!

    By the way, I admire your thinking. I wish I'd got to your position of wisdom (not beating yourself up) a lot earlier.
     
  8. minkeygirl

    minkeygirl Narcissism = lack of self awareness

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    You're nit picking about a general idea.

    Even after I first got sick almost 20 yrs ago I didn't blame myself. Sure I have wondered what would have happened if I turned left instead of right, but I don't dwell in it.

    Blame serves no purpose and only causes more anguish.
     
    Mij likes this.
  9. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    Yes.

    I sometimes find that the change comes after a bowel movement. The gut seems to be strongly involved, at least for a substantial proportion of us, and it may be via the vagus nerve.

    I noticed a strong gut-function/weakness connection long before ME-proper. When I was bloated, I was weak and woozy. My legs in particular became weak. My doctor of course dismissed the possibility out of hand, saying something like "They can't possibly be connected"! :bang-head:
     
    sming likes this.
  10. Scarecrow

    Scarecrow Senior Member

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    Or you're missing the point? (I don't mean this in an aggravating way - very difficult with the written word sometimes.)
     
  11. Dr.Patient

    Dr.Patient There is no kinship like the one we share!

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    Could you please specify what happens after a bowel movement, thanks.
     
  12. optimist

    optimist Senior Member

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    Before I got ME I would normally get very tired after eating a dinner - I though it was normal, but after ME I've started to wonder how normal it was...
     
  13. sming

    sming

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    I know it's a waste of time but when you have OCD and depression, your brain disagrees. Like I said, IBS and refractory depression don't have treatments either so it's nothing new. I'm not making light of CFS here, I'm just highlighting that it's not new territory for me.
     
  14. sming

    sming

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    awesome post, thank you. Do you have any recommendations for doc's or clinics in NYC? I'd like to find out my CPET results. I do wonder about days like today when I've been well all day. Would that affect CPET results do you know (i.e. how bad you are feeling at the time of the test) ?

    Regarding the "golden window" - it's out the window. I've been like this for at least 10 years. I just always put it down to depression & IBS. Quite understandably I'd say. I've had several conditions misdiagnosed already so it wouldn't come as a surprise.

    I am still working, just. I've lost jobs due to my conditions and am constantly worried about losing my current job. Thankfully so far they've been very understanding when I've been unable to work.
     
  15. sming

    sming

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    Wow. How did I not discover this (i.e. CFS / gut relationship) before? I searched many times for exhaustion & IBS links and posted quite a few times too. My well-being and energy is highly linked to BM's. I've said to literally 10 doctors "when my IBS is bad, I feel like I have the flu. When my IBS is good, I am good.". Blank expressions ensued every time.
     
    MeSci likes this.
  16. sming

    sming

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    not to mention having 2 kids. Sadly my eldest has picked up on my slothliness and my IBS and prefixes requests with "if your belly is OK, ..." :(
     
    MeSci likes this.
  17. sming

    sming

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    you hit the nail on the head. If everyone tells you there's no reason to be unusually exhausted, you end up believing it and beating yourself up (well, headcases like me do anyway). One of the main tenets of depression is being too hard on yourself and having unrealisticly high expectations. Bingo.
     
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  18. sming

    sming

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    I've tried the "would you beat yourself up for having cancer?" argument many times and my OCD demolishes it instantly. With OCD you can't "win" any logical arguments since it biologically cheats. Trust me, I have the medical bills as testament.
     
  19. minkeygirl

    minkeygirl Narcissism = lack of self awareness

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    I have OCD so I get that part if it.

    Well you need a diagnosis. So time to get some labs done.
     
  20. SOC

    SOC Senior Member

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    I don't know that we know yet if doing the CPET test on a good day or a bad day makes a difference. There is SO much research still to be done in ME/CFS.

    I'm not really current on the specialists in NYC. You could search the forum for "specialist NYC". That would probably best done using the Google site search. There's a link to it near the bottom of the Forum homepage. You can also check in the ME/CFS Doctors Forum here at PR.
     
    sming likes this.

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