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Duration of fatigue

Discussion in 'Post-Exertional Malaise, Fatigue, and Crashes' started by sming, Jul 25, 2014.

  1. sming

    sming

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    I'm new to CFS so forgive the potential duplicate question, it's not easy an easy topic to search for.

    Is it possible for CFS to exhibit the following symptoms during the day:
    0500-0900: fatigue
    0900-1500: little/no fatigue
    1500-1800: fatigue
    1800 onwards: little/no fatigue

    Thanks, Pete
     
  2. minkeygirl

    minkeygirl Narcissism = lack of self awareness

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    There is no rule to how this works. Whatever happens to you is what happens. I feel like crap when I get up. Rally for a bit, then crash for most of the day and then perk up around 4.

    It's pretty common for us to feel better later in the day but there are some who feel better in the morning.

    Whatever is happening to you is what it is.
     
    justy and WillowJ like this.
  3. Dr.Patient

    Dr.Patient There is no kinship like the one we share!

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    This biphasic curve is seen in many patients. I too have it...
     
  4. sming

    sming

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    I get your sentiment. However I'm new to the potential diagnosis of CFS. For many years I've been treated as IBS+depression but I've always felt something else was going on. I'm still trying to work out if CFS is a viable diagnosis - and will probably ask a bunch of n00b questions in the process...
    sounds like the inverse of my day. 4pm at work is my most dreaded period. I go and nap on a park bench for 30 mins when possible and/or just try and look like I'm doing something and not fall asleep...
     
  5. minkeygirl

    minkeygirl Narcissism = lack of self awareness

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  6. optimist

    optimist Senior Member

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    I can relate to that, except I don't get to the point of no fatigue. I am like a YoYo without a fixed pattern. Somtimes morning is good, sometimes night, sometimes mid day. Sometimes a few good days continually, sometimes bad days continually, sometimes one good, one bad, a good again...
     
    Tammy, MeSci, sming and 2 others like this.
  7. minkeygirl

    minkeygirl Narcissism = lack of self awareness

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    I also don't know what DrPatient means about biphasic curve. You have multiple phases.
     
  8. Dr.Patient

    Dr.Patient There is no kinship like the one we share!

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    Yes, same with me too, totally unpredictable!
     
    optimist likes this.
  9. Dr.Patient

    Dr.Patient There is no kinship like the one we share!

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    Fatigue in the morning and evening, with some energy in the afternoons and nights is sometimes referred to as biphasic- two upward curves in energy...
     
  10. optimist

    optimist Senior Member

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    My only way of getting some stabilizing effect to the YoYo is being very strict about what i eat, though not always successful.
     
    MeSci likes this.
  11. minkeygirl

    minkeygirl Narcissism = lack of self awareness

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    @sming What you have is a Duophasic curve. If you want to call it anything. It just is.
     
    heapsreal likes this.
  12. SOC

    SOC Senior Member

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    I've stopped the yoyo thing for me by pacing better. Without HR monitoring to stay below my AT, I was always in that unpredictable state. Now I can predict what I can do 90% of the time. It's certainly not everything I want to do, but I can do more overall by keeping a steady low level of activity instead of doing the roller coaster thing.

    Sometimes that bad morning, good afternoon, bad evening problem is related to OI, especially if you have low blood volume as a number of PWME do. You get dehydrated overnight so you feel crappy in the morning. You rehydrate sufficiently once you're awake to feel better for a while, but don't manage to get your blood volume up enough to stay feeling okay.
     
    Mij, Little Bluestem, SDSue and 5 others like this.
  13. taniaaust1

    taniaaust1

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    My energy levels are lower in the morning probably due to the coexisting POTS and I dehydrate some during the night. I pick up in the afternoon but if I do anything on my feet, Im then exhausted by evening. (the only way I can avoid that is to not be doing on my feet things in the arvo when Im feeling at my best).

    If you only have fatigue, depression and IBS, I'd suggest not really considering much ME/CFS as usually one has many other symptoms too, few symptoms may lead to wrong diagnoses. If you do feel depressed, that alone can cause bouts of fatigue. Depressed people may follow cycles to things too.

    Fatigue cycles could also be caused by issues to certain foods you regularly eat.
     
  14. Dr.Patient

    Dr.Patient There is no kinship like the one we share!

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    Please look at my thread Eating easy to digest food, maybe it'll help you...
     
  15. sming

    sming

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    I'm not sure what you mean here. Either way I have nearly all the symptoms listed on most CFE definitions, except for joint & muscle pain.
     
  16. sming

    sming

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  17. sming

    sming

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    that's familiar... I have a seeming x-weekly cycle. x weeks of terrible IBS pain, fatigue and depression (~ 1/10 life quality) and then x weeks where it recedes to the milder daily cycle in my initial post (~ 7/10 life quality). Not many IBS'ers have this pronounced cycle, which lead me towards investigating CFS.
     
  18. SOC

    SOC Senior Member

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    @sming
    Exactly right on the OI=orthostatic intolerance :)

    AT = anaerobic threshold. It is determined using a CPET test (an exercise test on a bike). Most, probably all, ME/CFS patients have abnormal CPET tests indicating problems with aerobic metabolism so that we are doing anaerobic exercise during activities of daily living. That is, our bodies use anaerobic glycolysis for most daily activities (metabolic equivalent to hardcore training for most people) instead of the normal aerobic metabolism. This causes many difficulties with physical activities so many of us are unable to work and largely housebound. Some of us are bedbound.

    If you have ME/CFS and are still working, I strongly suggest you get yourself into the care of a top ME/CFS specialist so that you stay that way. Many of us started with mild symptoms like yours and deteriorated over the years because we weren't getting the right medical advice and treatment. Proper pacing is critical slowing the downward slide. Patients who get the right care within the first 3-5 years of the illness have a much greater chance of remission than patients who don't. No sense in missing that golden window.

    There are only a handful or two of top ME/CFS specialists -- very, very few in most parts of the world -- so most of them have long waiting lists. I suggest you get on several waiting lists now.
     
    justy, Little Bluestem, SDSue and 2 others like this.
  19. sming

    sming

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    thanks for the info. In one way I do want CFS as a dx since it may alleviate some of the blame I inflict on myself for being tired all the time. And besides, I already have two chronic debilitating conditions so a third is just a 50% increase ;)
     
  20. minkeygirl

    minkeygirl Narcissism = lack of self awareness

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    I'm not sure why you beat yourself up over something you have no control over. A waste of energy IMO.

    You don't want a disease that has no treatment.
     

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