1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Dr. Kerr, I presume?
Clark Ellis brings us a rare interview with British researcher Dr. Jonathan Kerr who is now living in Colombia.
Discuss the article on the Forums.

Drinking TONS of water!! Always thirsty

Discussion in 'Gastrointestinal and Urinary' started by livingwithcfids, Nov 26, 2011.

  1. livingwithcfids

    livingwithcfids

    Messages:
    75
    Likes:
    7
    Wondering if anyone else has this? I drink A LOT of water each day because i'm always thirsty.

    On rare occasions I will drink a bottle of water, and then 10 minutes later need to use the restroom, as if my bladder nor g.i tract retained or absorbed any of the water. Weird?
  2. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    6,915
    Likes:
    5,772
    Albuquerque
    Sounds like you have diabetes insipidus--very different from "normal" diabetes. Many of us have this problem. You'll find Rich Van Konynenburg has written a lot about it here.

    It is one of the causes of low blood volume.

    Sushi
  3. mellster

    mellster Marco

    Messages:
    799
    Likes:
    178
    San Francisco
    Potential remedies are LDN and medical cannabis (try to google those in conjunction with d. inspidus) as it is believed to be of (auto-)immune origin. cheers
  4. txfriend

    txfriend

    Messages:
    34
    Likes:
    5
    I had diabetes insipidus for a while; strangely, it passed, as many symptoms of ME/CFS do. I drank and drank and peed and peed and never quenched my thirst. An endocrinologist gave me some nose spray med (years ago, can't remember name...DVAP?) and when I used it I would bounce from wall to wall walking down the hallway to the bathroom. I did get over that symptom, though.

    I have been meaning to ask my dr. for a blood volume test, but do not think the VA even knows how to do it; is there a specialist that would know how?
  5. Ocean

    Ocean Senior Member

    Messages:
    1,176
    Likes:
    254
    U.S.
    I had this too. I did test positive for mild diabetes insepidus but by then my symptoms had improved. I'm not sure but Sudafed seemed to help with this, when I started taking it daily for nasal congestion my POTS symptoms and the never ending thirst greatly improved. I also craved salt like crazy then, maybe because I was drinking so much?
  6. Leonora

    Leonora

    Messages:
    32
    Likes:
    0
    Norway
    I had this too. Then my doctor found out I was too low on Aldosterone and put me on Florinef which binds the salt (and consequently water) in the body. By that blood volume goes up as well as BP. My BP has normalized now (120/80 from being 85/55). I am not that thirsty anymore nor do I have to pee as much as before.
  7. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,989
    Likes:
    4,967
    Sth Australia
    I used to get constant thirst and I know this is going to sound weird to some but I had that fixed by a homoeopath... I had been drinking heaps for many many months (so much that I was waking up and having to get up and drink and pee 6-7 times during the night). One treatment of a homoeopathic med..and the constant thirst I'd had for ages was gone.
    (sorry I dont know which homoeopathic med he used..its the only ME symptom of mine which has been fixed by homoeopathic meds).

    Nowdays I do still drink a lot but only when I need to be active as it helps with the POTs (and I dont get that intense thirst I used to get). Fluid thou still seems to go right throu me (i drink and need to pee 20mins later.. it used to happen even quicker)
  8. Athene

    Athene Never give up

    Messages:
    1,130
    Likes:
    150
    Italy
    I drink 6 to 8 litres of water a day (that's about 10 to 14 pints I think, something close to that). And of course I wee a great deal. I don't force it down, that's how much water I want to drink. But I don't have diabetes insipidus, I have been tested several times.

    My current doctor said it is very good that I drink that much, as it is necessary to eliminate the bacterial toxins I am constantly poisoned by. I am also dealing with mycotoxins on and off, viral toxins and of course heavy metals. He said my bare daily minumim should be 4 litres but the more I can drink the better.
  9. alex3619

    alex3619 Senior Member

    Messages:
    7,230
    Likes:
    11,368
    Logan, Queensland, Australia
    Hi, as a general rule drinking more water is good. However, there are two contraindications.

    First, if you develop a severe headache watch your weight closely. If you retain the water it can increase cranial pressure and result in death. This was only discovered a few years ago. By watching weight you can tell if you are really dehydrated or just feel like drinking. Suck on ice chips if you are thirsty and want to drink but have drunk too much - you take in less water that way.

    The second issue is minerals. Drinking flushes toxins, but it also flushes minerals. Loss of minerals from excessive drinking could make you worse over time. This is a balancing act but I don't know enough to clearly articulate how to balance the two. Just be cautious.

    Bye
    Alex
  10. Timaca

    Timaca Senior Member

    Messages:
    420
    Likes:
    75
  11. hurtingallthetimet

    hurtingallthetimet Senior Member

    Messages:
    612
    Likes:
    115
    hello if you havent already you really should see your doctor and let them know...sounds like you got some good advice from the others already..

    i am thristy alot also..but for me its ice that i crave....was told could be because i was anemic...but i like to eat ice alot and my mouth stays hot...
  12. August59

    August59 Daughters High School Graduation

    Messages:
    1,480
    Likes:
    405
    Upstate SC, USA
    That is a classic symptom for diabetes mellitus as well. It happened to me aout 3 weeks ago. Could not get enough to drink and stayed in the bathroom. Vision was getting fuzzy, so checked sugar and it was 484. Styed that way for about 6 or 7 days. Woke up Saturday morning and my fasting sugar was 104 and 1 hour later it was 150. The day before my fasting was 254. I can't wait for doctor to explain this one. I geuss I have pancreas fatigue now!
  13. CAcfs

    CAcfs Senior Member

    Messages:
    178
    Likes:
    92
    I have this exact problem, and it's pretty bad. I just had my blood sugar tested and it was completely normal. The Endo didn't know what to tell me as far as this symptom. He was an *#&-hole though, and suggested it was from OCD (which I do have). But he just really didn't care, despite the fact that this symptom is very disturbing.

    And yes, when I drink a lot, which I often do chug about 32 oz to relieve the extreme thirst, I have to then pee like 15 min later. The Endo did tell me that with regular diabetes, you don't pee it out right away....it takes hours.

    I would love to try Florinef, just can't get anyone to prescribe it. I think pushing for that will be my next step.

See more popular forum discussions.

Share This Page