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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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Dr. Teitlebaum and WPI

Discussion in 'Latest ME/CFS Research' started by ndrmda, Nov 27, 2009.

  1. Cort

    Cort Phoenix Rising Founder

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    Raleigh, NC
    It just shows how complicated it all is doesn't it? RNase L was (is?) a big thing.

    Several studies suggested that RNase L fragmentation was commonly found in ME/CFS and, importantly, they were able to correlate symptom severity with the degree of fragmentation: it seemed to be a key part of this disease. (Some later studies have not been so successful, however.)

    But here we find - at least according to this group - that RNase L is not correlated with XMRV diagnosis. How could this be?; how is it that a common finding in Dr. Peterson's set of patients (RNase L) - does not correlate with another common finding in his set of patients (XMRV)? There are apparently a significant # of patients with RNase L problems without XMRV and vice versa.

    Then there are cytokines? the Science paper said as I remember that the patients in the study had high IL-8 levels. Dr. Klimas just did a study showing ME/CFS patients had LOW Il-8 levels. It's just very complex!

    I'm ready for anything....:confused:
  2. Eric Johnson from I&I

    Eric Johnson from I&I Senior Member

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    How is this the news that's "not really the 'bad' news." This is no news, unless there are credible sources for Mikovits intending to prove that, which I think is unlikely unless she has reasons she hasnt divulged. At face value, the DeFreitas virus is in a whole different class of retroviruses, which is plain as day, but it is conceivable that someone could figure out what errors DeFreitas made, if any. And thus re-interpret in a different way those of her assays which that someone believes are valid.

    I've seen a million patients talking about how XMRV must be the DeFreitas virus. They were wrong. Some reporter misunderstood something and said 20% of the subjects had cancer, which was believed by another researcher and mention in his comments on the Mikovits paper. Reporters get stuff wrong a lot.
  3. lisaxxx

    lisaxxx Guest

    Teitelbaum

    Quote "Teitelbaum himself seems to report everything in a way that is designed to glorify himself and sell supplements"

    Do tell

    He has claimed a Success Rate of something like 90% for CURING people with CFS
    Yet after like 10 years of this claim I have never found even one person CURED by him
    He also runs a series of Fibro-Fatigue centers which also promise quite a lot - but again I cannot locate anyone actually CURED at one of these centers
    Not saying they don't exist.....
    But if they do they are very very hard to find

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