Discussion in 'General ME/CFS Discussion' started by knackers323, Nov 9, 2014.
Anyone seen this guy or heard reliable reports on his treatments and results?
Where did you hear about it ? The only Google result I get is this thread.
Sorry misspelled it. Dr Tae Parks. Scroll down a page or two.
http://www.investinme.org/Documents/Journals/Journal of IiME Vol 1 Issue 2.pdf
That's feels serendipitous that this should pop up again. I'm starting IVIG soon and was searching for IVIG in ME and came across this guy a few days ago and now here he is again.
I note that he advocates a pure diet, good sleep hygiene and:
Strict control of exercise and activities.
No heavy lifting (anything using upper extremities – such as house cleaning) is prohibited.
Walking is allowed if patient improves.
If the patient feels any post-exertional malaise, then reduce the exercise.
sorry the above should be in quotes, but my quotes button has gone walk about.
I also like their definition of rest:
How to have rest
Rest (like monks meditate),
No loud music and no reading books.
In acute stages, absolutely no exercise.
If anyone does exercise they may develop cardiomyopathy or severe cardiac arrhythmia - even death.
They only give 1G a week, whereas I will be having 10g one day a month - I think even 10g is still not a lot. I think for CVID etc they give about 30g.
The gist of it is intravenous IGG, complete avoidance of exercise during the program (see Justy's post for more detail on the exercise) and a diet of only rice, vegetables, and high protein: specifically meat and fish (but no pork). He lists many common foods to avoid during the program. Very plain diet, but including high protein.
Of course, the intravenous IGG is the part that is impossible to get for ordinary people with no access to decent doctors.
@justy, you're not the only one who thought that!
I also thought the quote option was simply gone before I saw the thread that Sushi posted about above.
I had even started typing in the tags manually, e.g. [ quote ] and [ / quote ] but without the spaces.
Tae Hong Park, M.D.
181, Bang-l Dong SONG-PA-KU Seoul, Korea
Tel: 82-2-423-0119 E-Mail: email@example.com
Calling gets you a recording of a person speaking Korean with very pleasant music, will try to call back at a different time
How is it CFS only has a 5-10% recovery rate, and yet so many of these "experts" cure of 90% of their patients?
Or am I just bad at math?
You can also try a Google Site Search
Separate names with a comma.