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Dr. Pridgen's 9 different cocktail mix patents & research under Dr. Carol Duffy name

Discussion in 'Active Clinical Studies' started by lartista, Mar 25, 2014.

  1. catly

    catly Senior Member

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    Sure hope he's onto something.

    FWIW, I've been on celebrex and valtrex since March and I'm doing a little better.

    Perhaps I should ask my doctor to check in with him to find out of the combo we chose is the one he is recommending out of all of the original choices.
     
    heapsreal likes this.
  2. m1she11e

    m1she11e Senior Member

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    He for sure is recommending Famvir as his first choice.
     
  3. m1she11e

    m1she11e Senior Member

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    That's great that your are feeling better. What is your dosage of both Valtrex and Celebrex?
     
  4. catly

    catly Senior Member

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    I'm taking 200 of Celebrex daily and Valtrex 500 mgs twice a day.
     
  5. m1she11e

    m1she11e Senior Member

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    Do you think it is the Celebrex that is helping your pain that is making you feel better?

    I would have your Doctor check with Dr. Pridgen. I think that Famvir at a dose that I took for several years is recommended. From what I gather from others you are on the dose Dr. Pridgen recommends for Celebrex.

    Did you have any "die off" or did you feel worse when you first started this combination?
     
  6. catly

    catly Senior Member

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    Hi @m1she11e, I did not have any herxing when I started the combo. I had already been on Valcyte for almost 10 months when I started the Valtrex/Celebrex. I also did not have any problems with the Valcyte, but I may be somewhat unusual in that I don't have problems with meds or supplements. Sometimes I think I could eat a drugstore and walk away unphased o_O

    Pain, fortunately (knock on wood) has not been a big issue for me. I think most of my improvements have been in regards to PEM from physical activity, which is better. Not so sure about mental activity, probably that has not improved. And without Ambien, I still can not sleep.:mad:

    I guess the idea behind Celebrex is to help reduce inflamation, which may be causing/enhancing some symptoms, not necessarily just pain.

    I think my CFS MD is now presecibing famvir. I see her tomorrow and will ask. Thanks!
     
  7. Aidan Walsh

    Aidan Walsh

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    Thanks so much m1she11e :)


     
  8. JT1024

    JT1024 Senior Member

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    I am sorry if I'm posting a duplicate... I'm having difficulty keeping track of what post on various forums.

    Just recently, I started Valtrex in addition to Celebrex. I expected nothing.

    Within 24 hours of starting Valtrex, lower back/hip pain and stiffness (that I've lived with for 10+ years) was eliminated. I was afraid of experiencing a placebo effect but it lasted 3+ days. Since I experienced elimination of back/hip pain/stiffness and major decrease in fatigue, I was ecstatic. I was wary since I've had a few (very few) similar experiences in 20+ years.

    Since the first 3 days, I did experience increased stiffness and pain but not in my back and hip areas. I've had trouble with shoulders and hands the last several months and the pain intensified after improvement in my hips and back. I now have an appointment with another ortho doc to determine if pain is due to tendon/ligament/soft tissue tears/damage or something else.Still need to rule out Lyme and co-infections. I tested positive for Lyme, Babesia duncani, and Anaplasmosis.

    So difficult to wade through everything. When physicians and their support staff don't have everything clear... it is that much more difficult for patients. Since I have worked in clinical labs for numerous years, what does that say for the average person??

    As soon as I find out info, I will share. My brain is mush at this point!
     
    ukxmrv likes this.
  9. Aidan Walsh

    Aidan Walsh

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    could not find good email on site it bounced back unable to send!! Is there a dircet email address please? thanks
     
  10. knackers323

    knackers323 Senior Member

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    Is anyone seeing benefits from the pridgen treatment?
     
  11. m1she11e

    m1she11e Senior Member

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  12. m1she11e

    m1she11e Senior Member

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    I am not on the protocol but following a group that is. So far I have not seen anyone getting better.
     
    boohealth likes this.
  13. knackers323

    knackers323 Senior Member

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    That is very disappointing
     
  14. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    I just wonder if the NSAIDS are targeting the inflammation which is high in cfs/me, going by past studies, it seems that inflammation can come from tnf alpha and il6 cytokines. I dont thing these nsaids really target this? Although i like the concepts of their thinking. I could be wrong but found this study.
    http://www.jimmunol.org/content/185/6/3694.full

    i have only just read the abstract. My experience is that i have used antivirals successfully and i also have ongoing back issues with arthritis and used my share of celebrex and mobic, i just cant say the nsaids helped my cfs symptoms, i cant say they did much for my back either?

    Something to think about, maybe need to look into things that target the cytokines involved in cfs, there does seem to be some good herbal supplements that help inflammation, just need to research some more to find some that target those cytokines involved??

    I do think immune mods/interferon inducers may help with this type of inflammation also??
     
  15. ukxmrv

    ukxmrv Senior Member

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    I have done better on Valtrex and Celebrex so if I was a member of the group would be reporting a little success. however I have ME and FM

    Any idea why no one would be reporting any success on that group?
     
  16. JT1024

    JT1024 Senior Member

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    Recently I had an appointment with an Infectious Disease doctor at Mass. General in Boston. My primary purpose for the visit was to rule out/rule in Lyme. I had seen this physicians at a symposium on Lyme in November 2013.

    Key take-aways from 3 hours with this new physician are 1) she takes nothing from other physicians... she will repeat testing to come to her own conclusions (or confirm) - hence the 4 referrals to other physicians for evaluation; 2) she said the herpes family of viruses loves nerve tissue and my improvement on Valtrex would make sense. The dosage I was on was not sufficient to receive the full benefits.

    Dr. Pridgen's patents include multiple combinations of anti-inflammatories and anti-virals. I suspect an increase in the anti-viral dosage could provide substantial benefit.
     
    Valentijn and heapsreal like this.
  17. knackers323

    knackers323 Senior Member

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    She sounds thorough. You mind me asking what the 4 referrals are for?
    Did you talk about mycoplasma with her?
     
  18. JT1024

    JT1024 Senior Member

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    I didn't even discuss Mycoplasma with her. I haven't even seen the test results from the 15 tubes of blood they drew. She did call about some lab tests I hadn't been concerned over and she mentioned a Borrellia strain I had never heard of (Borrellia hermsii). I suspect MGH is developing tests for Lyme and other diseases since Dr. Alan Steere is now there. He is one of the main authors of the IDSA guidelines for Lyme. These are the guidelines used by insurance companies to deny payments for treatment.

    Many doctors/researchers at MGH and other hospitals in Boston are exceptionally snobby...after all most are affiliated with "Harvard" medical school. No one knows as much or does better than they do.. at least in their own minds. I've worked in Boston area hospitals for many years. The arrogance is pitiful. I'm thrilled when I see Stanford or other groups making headway in ME/CFS/FM/Lyme areas.
     
  19. boohealth

    boohealth

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    She sounds too bossy. I would hate a doctor like that. She does not always know best.

     
  20. boohealth

    boohealth

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    Uck. Too many drugs. Eyeball biopsy. I will not recommend her to anybody that's for sure.

     

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