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Dr. Nancy Lee Steps Down from CFSAC

Discussion in 'Action Alerts and Advocacy' started by Gemini, Aug 27, 2014.

  1. Gemini

    Gemini Senior Member

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    Notice Distributed by CFSAC staff:

    There have been two changes in the management of the Chronic Fatigue Syndrome Advisory Committee (CFSAC) at HHS. Dr. Nancy Lee will be stepping down as the Designated Federal Officer (DFO) for CFSAC. We are pleased to announce the appointment of Barbara F. James, M.P.H., Senior Public Health Advisor in the HHS Office on Women's Health (OWH) as the new DFO for CFSAC. Ms. James brings a wealth of experience to this position. She is the former Director of the OWH Division of Program Management and a member of the leadership team at the Office on Women's Health (OWH) since 2007. Prior to joining OWH in 2000, she was at the National Heart, Lung and Blood Institute (NHLBI)/ National Institutes of Health, where she was the Executive Secretary for the Ad Hoc Committee on Cardiovascular/Pulmonary Disease Risk Factors in Minority Populations, a multidisciplinary advisory committee to the NHLBI Director. She has extensive experience managing people and programs and has led the HHS Women's Health Time Capsule Initiative and is a task leader for the Federal Interagency Reentry Council - Women and Reentry Subcommittee. Ms. James will assume the duties of the DFO effective immediately.

    Additionally, Marty Bond will be stepping down as the Assistant DFO for CFSAC to lead the HIV/AIDS efforts for OWH.

    Over the next months, Marty and Nancy will work closely with Barbara to ensure a smooth transition into her new role.

    The CFSAC Support Team
    http://www.hhs.gov/advcomcfs/index.html

    Sign up for the CFSAC listserv to receive the latest updates about CFSAC:
    http://www.hhs.gov/advcomcfs/cfsac_email_list.html
     
    catly and Valentijn like this.
  2. minkeygirl

    minkeygirl But I Look So Good.

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    Left Coast
    Does she know anything about ME/CFS?
     
    Valentijn likes this.
  3. SOC

    SOC

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    She can't be much worse than Nancy Lee is that regard. :rolleyes: Still, it sure would be nice if they actually appointed someone who understood the illness, wouldn't it?
     
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  4. fibrodude84

    fibrodude84 Senior Member

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    The budget this is given is pathetic. If we weren't so fatigued maybe we could create better awareness and demand more research.
     
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  5. Valentijn

    Valentijn The Diabolic Logic

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    I'm not sure this is going to be an improvement. Her undergrad education was in Biology, Psychology, and Sociology. If that's not a deliberate set-up for a biopsychosocial career, I don't know what is. And her masters degree (maternal and child health and population planning) seems to have absolutely nothing to do with ME/CFS.

    So no medical background, and it doesn't look like she's published anything. And I can't find any prior CFS involvement.
     
    catly likes this.
  6. Jarod

    Jarod Senior Member

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    planet earth
    The CFSAC doesn't really make any decisions do they?

    I thought the CFSAC function is to take notes and report to another group?
     
    Last edited: Aug 28, 2014
  7. SOC

    SOC

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    I can't Like this information. :rolleyes: However, it's good to know that OWH is assigning another completely inappropriate person as our DFO. We might as well know what we're dealing with. It looks like CFSAC is the lowest ranking assignment at OWH, given to whomever they don't have a better assignment for so she has something to write on her c.v. It doesn't appear she's anyone with any clout whatsoever. :bang-head:

    At this point we can only hope that she has more character than credentials and decides to do something for this grossly underserved population. I'm not counting on it, but at this point hope is all we've got. :(
     
  8. Iquitos

    Iquitos Senior Member

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    "She has extensive experience managing people and programs..."

    Yes, that's what we get, folks. MANAGED! We don't get respect, we don't get research into the cause, treatment or cure. We don't get health care appropriate to our illness. We get MANAGED! Same song, hundredth verse.
     
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  9. Ren

    Ren .

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    Is there a job description, besides the duties outlined in the charter? http://www.hhs.gov/advcomcfs/charter/ Will the duties be different at all in the (hopefully forth-)coming charter? How does a background in maternal/child health represent men with ME? or women without children with ME?

    https://www.womenshealth.gov/about-us/who-we-are/national-staff/barbara-james.html

    What if you have a young son with ME??
     
    Last edited: Aug 28, 2014
  10. Gemini

    Gemini Senior Member

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    Jennie Spotila:

    "Dr. Lee was a lightning rod for criticism and controversy..."

    http://www.occupycfs.com/2014/08/27/turnover/
     
    catly likes this.

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