Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Dr Nahle's June letter- invitation to join 'ALL OF US'

Discussion in 'General ME/CFS News' started by Kati, Jun 24, 2017.

  1. Kati

    Kati Patient in training

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    http://solvecfs.org/june-2017-research-1st-dr-nahle-letter/

    On this editorial piece on Solve ME/cfs, Dr Nahle discusses the US precision medicine project called "All of us". It is important in my views that US patients participate in this big project, because it puts us patients 'on the map'.

    Here is an exerpt:


    Read more at the link above and more importantly, if you are from the US, participate.
     
    Last edited: Jun 24, 2017
  2. voner

    voner Senior Member

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    @Kati,

    thanks for posting that. The director of the project, Eric Dishman, has a series of short videos describing some of the basics of the program. the of the project's "Core Values" is transparency. certainly a change from what this community has experienced in the past when involved with the US federal government . Mr. Dishman seems to be refreshingly earnest and motivated.

    when I went and tried to download the app in order to start the process of joining the network (they are in beta testing - a good time to get involved in feedback on the software, etc.), I could never find the app on the ios app store..... anyone else find it?
     
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  3. Kati

    Kati Patient in training

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    Hi @voner, glad to hear. Coming from Canada i can't even open the link to the website. I hope others can help
     
  4. Snow Leopard

    Snow Leopard Hibernating

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    South Australia
    Large scale prospective studies like this are certainly interesting!
     
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