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Dr. Montoya no longer seeing patients/only research!

Gingergrrl

Senior Member
Messages
16,171
@ebethc I take both Monolaurin and Famvir but it is hard to say which is more effective and I feel they serve different purposes. Monolaurin can also be hard on the stomach for some people.
 

ebethc

Senior Member
Messages
1,901
@ebethc I take both Monolaurin and Famvir but it is hard to say which is more effective and I feel they serve different purposes. Monolaurin can also be hard on the stomach for some people.

@Gingergrrl - have you ever taking them separately? how long do you take monolaurin? for the rest of your life? how much per day?

thanks
 

ebethc

Senior Member
Messages
1,901
Hi @Gingergrrl43 Dr. Kogelnik is indeed my ME specialist.

Last time I spoke with Lorie (his RN nurse), about a month ago, she told me that although he is very busy with research and grants submissions on top of the clinical practice, he's still seeing patients and Dr. David Kaufman is too and there is ongoing cooperation between the two of them.

From the little searching and reading on the net about Dr. Kaufman he seems an excellent doctor with 30 years worth of experience in internal and infectious disease medicine (HIV and Lyme included), but I don't know him personally.

I've also seen Dr. John Chia in Torrance (back in 2012). He is the ME/CFS doctor researcher focusing on EV (cosackie and echo viruses). He also is a cosignatory of the ICC (international consensus criteria on ME).

Although he is an excellent and caring doctor I'm not currently under his care.

There is a patient of his who has a blog (quixoticmeblogspot.com) on which he writes extensively about treatments and progress, or lack of it, with Dr. Chia.

IMHO you should ask your ND to run some basic herpes viruses titers blood tests (EBV, HHV6, CMV, HSV1 and 2) as per Dr. Montoya's clinic and possibly a NK function test (Quest Diagnostics is the lab used for these test by Dr. Kogelnik) for a start, if you haven't already have them done.

If I was you I'd call Dr. Kog and Dr. Kau and get in their clinic asap, either doctor I'm sure would be great.

As far as treatments Dr. Kogelnik is very much focused on AV antivirals, if that is your case, so you need to judge before hand if you can and are willing to take them. This is a general statement that I'm making, each one of us is different and has a different ME picture, many roads lead to ME/CFS ...

If you're happy with your ND you can see Dr. Kog or Dr. Kauf or Dr. Chia in parallel and try to coordinate the different interventions.

I hope I'm being of help, if you'd like to have more in depth info don't hesitate to pm me. I'll do my best to help you :).

Can you tell me which Leptin and NK Function tests Drs Kogelnik/Kaufmann/Montoya are interested in? I may see Kau, and it would be great if I could just show up w all the tests in hand... My current doc will order the tests, but she wasn't sure which ones

"Natural Killer Cells, Functional" from Quest Labs.. is this it?
http://www.questdiagnostics.com/testcenter/BUOrderInfo.action?tc=34184&labCode=CNL

Leptin Test, Quest Labs
http://www.questdiagnostics.com/testcenter/BUOrderInfo.action?tc=90367&labCode=SJC

thanks
 

Gingergrrl

Senior Member
Messages
16,171
@Gingergrrl - have you ever taking them separately? how long do you take monolaurin? for the rest of your life? how much per day? thanks

@ebethc I initially started on Monolaurin with my former naturopath around Feb or March of this year but at that time it was too strong for my stomach and I had to discontinue it. We did several treatments to heal my GI symptoms and then I was able to go back on Monolaurin. I started Famvir in August of this year. So I have taken Monolaurin alone and Monolaurin & Famvir together (which I am continuing to do now.) IMO they just augment each other and one is a natural anti-viral and one is prescription. Both doctors said they are okay to take together.

As far as doses (and this is just for me and not to be taken as medical advice!) I currently take 1800 mg per day of Monolaurin and 1500 mg per day of Famvir. The Monolaurin as far as I know can be taken forever if I choose to. The Famvir (for me) is a six month trial and then we re-evaluate how I am doing. I take a lot of other supplements as well. Hope this answered all your questions!