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Dr Lucinda Bateman's Lecture

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Kati, Dec 16, 2009.

  1. Kati

    Kati Patient in training

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  2. CBS

    CBS Senior Member

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    Dr. Bateman's Lecture

    I was fortunate enough to be in the audience.

    She handed out copies of her powerpoint slides. I have those in pdf form.

    "The editors of Science asked that the WPI remove all references to Chronic Fatigue Syndrome before they would publish the article."

    The WPI stuck to their guns! And Science acquiesced. To me this is a huge signal that the paper was solid.

    This talk was December 2nd and it has been killing me not to shout this at the top of my lungs every time I leave the house.

    Also, some of her more unique comments concerned the proportion of her patients that were similar to the WPI patients in the XMRV paper and the fact that ARUP (a huge lational reference laboratory) is presently developing XMRV tests. ARUP's associate medical director in charge of retroviral testing is Dr. Ila Singh. She is the author of one of the XMRV prostate papers. Dr. Singh recently hosted Dr. Minkovitz for a talk at the Univ. of Utah.
  3. CBS

    CBS Senior Member

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    OFFER Utah (Dr. Bateman) and upcoming Conference

    OFFER Conference in April/May 2010:

    Quote from Offer Utah support board (http://www.offerutah.org):
    I am assuming that this conference will take place in SLC, Utah.
  4. fresh_eyes

    fresh_eyes happy to be here

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    mountains of north carolina
    Those people totally went to bat for us. They're superheroes.
  5. CBS

    CBS Senior Member

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    Dr. Bateman's interest in CFS

    Some of you may know this but for those who don't, Dr. Bateman's sister passed away from CFS complications several years ago. Dr. Bateman has been a huge hero for us as well.
  6. Kati

    Kati Patient in training

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    Dr Bateman is really passionate about CFS I can tell, she is also very caring, jusdt from looking at her talking and interacting with the audience. Those who have her as dr are lucky.

    She's done a good job at grounding us at where we are, what we know and what we don't know, and that we are really early in the researches,and use caution or restraint into testing for XMRV as of now. Commercial testing is not quite there yet.


    On another note, good luck to the person who will volunteer to transcribe this lecture... It's a long one!
  7. fresh_eyes

    fresh_eyes happy to be here

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    Wow, Shane, and she's your doctor? Lucky you! did you put her on the "Roll of Honour" thread?
  8. CBS

    CBS Senior Member

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    Dr. Bateman

    Fresh Eyes,

    Dr. Bateman is not my doctor but I live about 6 blocks from her office. I wouldn't be surprised to find myself in one of her studies. I see Dr. Montoya at Stanford. I have been in and out of his care for 15+ years (there was a period when I had to move in with relatives and could not afford to travel). Personally, I think that Montoya is also a fantastic doctor and I have some infectious findings and mid-brain abnormalities that are in the realm of his other specialty - toxoplasmosis.

    That said, anyone with Dr. Bateman as their doctor is indeed very lucky.
  9. V99

    V99 *****

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    Unfortunately I cannot access the video, only the surrounding page shows.
    Perhaps I will be able to later.

    So thank you to whoever transcribes it, or gets it onto youtube.
    :D
  10. _Kim_

    _Kim_ Guest

    Go Lucinda!!

    I love it - a doctor who growls!!
  11. _Kim_

    _Kim_ Guest

    The next step...

    ends at 1:15 minutes into the video...
  12. Cort

    Cort Phoenix Rising Founder

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    She is very impressive! I love how calm and objective she is - we're definitely in good hands with her.
  13. CBS

    CBS Senior Member

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    Kim,

    You did just fine on your own!

    ARUP is an abbreviation for Associated Regional and University Pathologists.

    www.aruplab.com.

    I have been doing a search on their site for XMRV everyday for the last two weeks.

    They are a huge lab and do lots of specialized tests like this. I have been to several "centers of excellence" just to have my blood drawn and sent back to S.L.C. because its one of the only labs that does a specific test. I may have mentioned this earlier - Dr. Ila Singh, one of the XMRV/prostate authors is the director of ARUPs retrovirus division.
  14. _Kim_

    _Kim_ Guest

    Thanks Shane. I capped it and put the full name in parentheses.

    Okay, now I have the connection of ARUP to Ila Singh's lab. Learning more each day...
  15. Samuel

    Samuel Bedbound with NO DOCTOR

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    I too will wait for transcription or another video format.

    Thank you for the transcript so far! Kim you are great!
  16. Marylib

    Marylib Senior Member

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    Kim, don't forget whomp switch...

    Just making sure you are getting down time, young lady. You don't want to see my dark side. Or maybe you do! I'll go look for it.
  17. _Kim_

    _Kim_ Guest

    :D @ Marylib

    I didn't intend to transcribe that much, but when her predictions caught my ear, I started typing as I was listening. And it turned into a much longer answer than I expected.

    I am resting. Promise.
  18. _Kim_

    _Kim_ Guest

    It's not much samuel, but I'm glad you could read the little bit I transcribed. To watch the video, I had to download a plugin for Firefox, which semi-crashed my system. But after I brought the system back up, I was able to watch the video.

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