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Dr. Kogelnik interviewed in MECFS Alert Episode 22/23 re Open Medicine Institute

Discussion in 'General ME/CFS News' started by Wally, Mar 16, 2012.

  1. Wally

    Wally Senior Member

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    Interview with Dr. Andreas Kogelnik

    [video=youtube;pbvmLXiZJ9w]http://www.youtube.com/watch?v=pbvmLXiZJ9w&list=UUxrPmgVwJ7-gLqZJK_qLeFg&index=1&feature=plcp[/video]
  2. SpecialK82

    SpecialK82 Senior Member

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    Really great interview, thanks for posting.

    The doctor makes it sounds as if they treat patients in a clinical setting, but when I go to their website it seems to be only research. He says they have about a thousand CFS patients which is hugely impressive. On their website it doesn't mention how one would go about becoming a patient, so I'm confused.

    Otherwise, he comes across as a very likeable and intelligent doctor, so glad to have this Open Medicine Institute :)
  3. Wally

    Wally Senior Member

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    MECFS Alert Episode 22 Part 3 of interview with Dr. Kogelnik

    Here is part 3 of the MECFS Alert Episode 22 Interview with Dr. Kogelnik

    http://youtu.be/FgHQf6_FH8Y?hd=1[video=youtube_share;FgHQf6_FH8Y]http://youtu.be/FgHQf6_FH8Y?hd=1[/video]
  4. Wally

    Wally Senior Member

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    For those who missed Episode 22 Part 2 of the interview with Dr. Kogelnik here is the link.

    [video=youtube_share;GYaSNgbjs8E]http://youtu.be/GYaSNgbjs8E[/video]
    sensing progress and heapsreal like this.
  5. Wally

    Wally Senior Member

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    Here is some additional information about Dr. Kogelniks background and his current involvement with the Open Medicine Clinic, Open Medicine Institute and Open Medicine Foundation that I thought might be of interest. Many of these links have been published elsewhere, but I wanted to try to capture a large part of the online information into one easily accessible location.

    Dr. Andreas Kogelnik received his PhD in bioengineering from Georgia Tech Institute of Technology. Dr. Kogelnik also received a MD from Emory University becoming the first MD/PhD graduate of the collaborative Emory-Georgia Tech biomedical engineering program. See, http://www.whsc.emory.edu/_pubs/mome...imitation.html and http://gtalumni.org/Publications/mag...l95/MdPhd.html.

    While at Georgia Tech Dr. Kogelnik was involved in developing MITOMAP, a human mitochondrial genome database. See, http://nar.oxfordjournals.org/content/24/1/177.full and http://www.jsbi.org/pdfs/journal1/GI...pdfSpring 2000. In 1997 Dr. Kogelnik founded Flexis, Inc, which has developed several database tools and technologies. See, http://www.flexis.net/About Flexis.html, http://www.zoominfo.com/#!search/pro...rgetid=profile and, http://www.linkedin.com/pub/andy-kogelnik/0/231/499.

    Dr. Kogelnik completed his medical training at Stanford University. He obtained his residency in Internal Medicine and a Fellowship in Infectious Diseases at Stanford University and its affiliated hospitals. Following his clinical training, he remained at Stanford with NIH funding for his post-doctoral research in microbiology, immunology and bioinformatics with Dr. Ellen Jo Baron and Dr. Stanley Falkow, where he explored host-response profiles in severely ill patients. During this time working with Dr. Jos Montoya, he was instrumental in the conception, design, and execution of the EVOLVE study. EVOLVE was a placebo-controlled, double-blind study of a subset of chronic fatigue syndrome patients with evidence of viral infection. Finally, Dr. Kogelnik worked with Dr. Atul Butte in translational informatics to determine patterns that indicated a high risk for adverse events in pediatric patients at Lucille Packard Childrens Hospital. See, www.openmedicineinstitute.org and http://www.ncbi.nlm.nih.gov/pubmed/17276366.

    In 2009, Dr. Kogelnik left Stanford to set up the Open Medicine Clinic, located next to El Camino Hospital in Mountain View, California. El Camino Hospital is a non-profit community hospital located in the heart of Silicon Valley and is within a few miles of Stanford University/Stanford Medical Center. El Camino Hospital opened a state of the art Genome Center in April of 2009. See, http://www.youtube.com/watch?v=2-vQpvLQbVE and http://www.elcaminohospital.org/. (A video of a CFS talk given by Dr. Kogelnik in April of 2011 at El Camino Hospital is also available on the hospital website and in a written summary on the Thoughts about ME blog. See, http://www.elcaminohospital.org/Abou...tigue_Syndrome and http://thoughtsaboutme.com/2011/04/2...nd-immunology/.)

    The Open Medicine Clinic was established as a specialty clinic for immune dysfunction, CFS/ME, autism and other unusual or poorly defined diseases. It is currently a fee-for service clinic, which is considered an out-of-network consultation by most insurance companies. The clinic is not in a position, at this time, to assume the role for a patients primary care.

    Along with the clinic, Dr. Kogelnik has also formed the Open Medicine Institute and the Open Medicine Foundation. The Open Medicine Institute is a collaborative, community-based translational research institute dedicated to personalized medicine with a human touch while using the latest advances in medicine, informatics, genomics, and biotechnology. The Institute works closely with the Open Medicine Clinic and other clinics to conduct research and apply new knowledge back into clinical practice. See, http://www.openmedicineinstitute.org/About.html and
    http://www.investinme.org/IiME Con...da.htm#Andreas. See also the research paper that Dr. Kogelnik worked on regarding XMRV http://www.sciencemag.org/content/ea...04963.full.pdf. The Open Medicine Foundation is a non-profit, collaborative medical foundation focused on advancing medicine through information technology, biotechnology and biomedical research.
    See, http://www.openmedicinefoundation.org/Contact Us.html.

    Information on both of the Open Medicine websites is somewhat limited at this time, but the sites do provide a brief summary about the Clinic, the Institute and the Foundation. Since opening 2 years ago, the clinic has exploded in growth and currently has over 1,000 patients. The Institute has been actively involved in ME/CFS research and development of information technology for use at both a research and clinical level. Additional detailed information about the Open Medicine Foundation is scheduled to be released in the very near future, so hopefully this will answer a lot more questions about the future of the clinic, the institute and the foundation. See,
    http://www.openmedicinefoundation.org/Donate.html

    If you have not taken a look at the video interviews with Dr. Kogelnik conducted by Llewellyn King as part of the MECFS Alert Series (Episode 22 Parts 1-3), they are worth viewing to get the most current information about the Clinic, Institute and Foundation. See, Episode 22 Part 1 - http://youtu.be/pbvmLXiZJ9w, Episode 22 Part 2 - http://youtu.be/GYaSNgbjs8E and Episode 22 Part 3 - http://youtu.be/FgHQf6_FH8Y
  6. sensing progress

    sensing progress Senior Member

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    thanks for posting that info Wally. I wonder what got Dr. Kogelnik interested in ME/CFS - do you know?
  7. Cort

    Cort Phoenix Rising Founder

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    Great stuff Wally - thanks! Dr Kogelnik has a big vision and wants to accomplish alot - another bright spot in the field. I'm trying to snag an interview..:)
  8. Ember

    Ember Senior Member

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    Here's another interview with Dr. Kogelnik: Episode 23

    [video=youtube;Dt8hKslAVk8]http://www.youtube.com/watch?v=Dt8hKslAVk8&list=UUxrPmgVwJ7-gLqZJK_qLeFg&index=1&feature=plcp[/video]
    Kati and Wally like this.
  9. Ember

    Ember Senior Member

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    And here's Episode 23 Part 2:

    [video=youtube;f3uvZurXSZU]http://www.youtube.com/watch?v=f3uvZurXSZU[/video]
    Wally likes this.
  10. Wally

    Wally Senior Member

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    Ember,

    Thanks for posting this new video.

    Interesting discussion about "cluster outbreaks" and whether the outbreak was really limited to a small geographical area.

    I had the thread title changed to refect that this thread includes Episodes 22 and 23. It can be changed again if another Episode with Dr. Kogelnik becomes available or if you think the current title needs some additional tweaking.

    Wally
  11. SarahLaBelle

    SarahLaBelle Prairie Plant

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    Oak Park, IL USA
    Dr Kogelnik

    In the interviews with Llewellyn King, Dr Kogelnik says he got interested from working with Jose Montoya at Stanford.
    Hope we learn more when Cort interviews him, too.

    5 videos on ME CFS Alert you tube channel, that is really great!
    Sarah
  12. Ember

    Ember Senior Member

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    In Episode 23 Part 3, Dr. Kogelnik focuses on clinical trials and the reasons to be hopeful:

    [video=youtube;PKAIdbOzcvg]http://www.youtube.com/watch?v=PKAIdbOzcvg[/video]

    Some of the progress that's been made in the last year to me holds more promise in the field than there has been for thirty years....
    Hopefully in the next coming year or two we'll be able to really start diving into some of these promises and make them reality.
    Wally likes this.

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