A New Decade of ME Research: The 11th Invest in ME International ME Conference 2016
Mark Berry presents the first in a series of articles on the 11th Invest in ME International ME Conference in London ...
Discuss the article on the Forums.

Dr. Kaufman or Kenny De Meirleir?

Discussion in 'ME/CFS Doctors' started by Mary, Jul 11, 2015.

  1. Mary

    Mary Senior Member

    Messages:
    2,745
    Likes:
    6,134
    Southern California
    Does anyone know of any major differences between them in terms of testing, treatment, etc.?

    I know that Dr. Kauman's initial visit is close to $500, and I was told they will be raising this very soon to around $525. I'm going to e-mail Dr. De Meirleir's asst to get the cost for a visit to him in Reno.

    I am concerned about the cost of lab tests. I'm on Medicare, which does cover a lot of lab work, but I have no idea if it covers any of these doctors' testing. I believe that a doctor can refuse to accept Medicare for medical treatment, but still have his labs covered - does anyone know if this is true or not?

    I know @Mouse girl asked a similar question about Medicare paying for labs last March, but I didn't see where anyone really knew the answer.

    Besides the costs, I would be very interested in anything pertaining to differences between the two doctors re testing and treatment etc. Thanks!
     
    Jennifer J likes this.
  2. Sushi

    Sushi Senior Member Albuquerque

    Messages:
    14,341
    Likes:
    21,489
    Albuquerque
    Yes this is true. I see De Meirleir and some of my labs are covered and some aren't, though he does not participate in Medicare himself.
     
    Jennifer J and Valentijn like this.
  3. Mary

    Mary Senior Member

    Messages:
    2,745
    Likes:
    6,134
    Southern California
    Thanks, Sushi - that's very good to hear! Can you give me an idea of (however rough) of what you have had to pay out-of-pocket for his labs?
     
  4. Sushi

    Sushi Senior Member Albuquerque

    Messages:
    14,341
    Likes:
    21,489
    Albuquerque
    It varies a lot from patient to patient. The factors involved might be easier to discuss in a chat or conversation.
     
  5. AaroninOregon

    AaroninOregon noob

    Messages:
    169
    Likes:
    119
    Hippietown
    How often is Dr. De Meirleir in Reno?
     
  6. Sushi

    Sushi Senior Member Albuquerque

    Messages:
    14,341
    Likes:
    21,489
    Albuquerque
    He doesn't have a regular schedule there--every few months. Otherwise we use telephone consults.
     
    Valentijn likes this.
  7. AaroninOregon

    AaroninOregon noob

    Messages:
    169
    Likes:
    119
    Hippietown
    Hmmm...I'll have to see what his schedule is like. Reno is about an hour shorter (driving time) vs. San Jose.

    Do I contact him via the phone number listed on his Himmunitas website or does he have a U.S. number as well?
     
  8. Sushi

    Sushi Senior Member Albuquerque

    Messages:
    14,341
    Likes:
    21,489
    Albuquerque
    Write to:
    Charlotte Francois
    charlottef@ehmb.be

    She may not answer though until she has his schedule, but that will put you on the mailing list for US patients.
     
    Jennifer J and Valentijn like this.
  9. AaroninOregon

    AaroninOregon noob

    Messages:
    169
    Likes:
    119
    Hippietown
    Thank you @Sushi !
     

See more popular forum discussions.

Share This Page