A New Decade of ME Research: The 11th Invest in ME International ME Conference 2016
Mark Berry presents the first in a series of articles on the 11th Invest in ME International ME Conference in London ...
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Dr. Jay Goldstein's Rapid Remission ME/CFS Treatments.

Discussion in 'General Treatment' started by zzz, Nov 1, 2014.

  1. soofke

    soofke

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    Dutchy
    exactly, and are you taking boron by any chance?

    didn't need to ask, just google :) https://www.hollandpharma.nl/en/assortiment/835400/Will_Pharma_Cholecalciferol_vitamine_D3_800ie if all else fails; I can spare about 20, which should cover a try-out
     
    Last edited: Jul 21, 2016
  2. sflorence

    sflorence Senior Member

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    @soofke Yeah, I did an extensive google search and that was the best I could come up with as well. Seems like you cannot order it directly from them. And if you could, the shipping would be around $25.

    I would really appreciate that! I will inbox you.
     
  3. Gingergrrl

    Gingergrrl Senior Member

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    Am not taking Boron, just Vit D. Do you think the Boron also helped your MCS in combo with the D?

    I looked at your link and it seems to be a Dutch product that is not available in the US. It also seems to contains dyes and fillers that I would be allergic to so will stick with my Vit D which is just pure D in an olive oil base. Thank you anyway for the info!
     
  4. soofke

    soofke

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    Dutchy
    okidoki, why they have this urge to give every pill a, in this case yellow, cutesy color I will never understand :thumbdown:
     
  5. Gingergrrl

    Gingergrrl Senior Member

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    I will never understand this either and yellow food dye (tartrazine) was the worst allergic reaction I have ever had thus far. Some of the food dyes in the US have actually been banned by the entire EU yet are allowed here... it is crazy! Thanks anyway and am glad you found something that helps your MCS.
     
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  6. knackers323

    knackers323 Senior Member

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    @Hip @zzz now this might sound stupid but could it be possible that patients feel better with less blood and oxygen in the brain because there is something in the blood or the oxygen itself that the brain is reacting to? some auto immune reaction maybe and with less blood/oxygen means less reaction and inflammation?

    or could it be that the brain itself is the problem and when getting less blood or oxygen it is unable to work as well and unable to send out the faulty signals as efficiently
     
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  7. knackers323

    knackers323 Senior Member

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    manasi12 and soofke like this.
  8. sflorence

    sflorence Senior Member

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    @zzz

    Is the Hydergine still working for you? I would like to try it but the link you have posted no longer works.
     
  9. Jesse2233

    Jesse2233 Senior Member

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    @Hip did you ever try high dose inostiol and Wellbutrin again?
     
  10. Hip

    Hip Senior Member

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    I did, but was never able to recreate that magic first two weeks on Wellbutrin, where my brain fog and low mental energy were completely in remission. I tried Wellbutrin again many times, but it no longer worked for me.
     
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  11. zzz

    zzz Senior Member

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    Sorry for the long delay in replying - I haven't been checking the board regularly recently.

    The hydergine had only a modest benefit for me, and over time even this benefit seemed to disappear. (As with all of Dr. Goldstein's medicines, YMMV.) So I have stopped taking it.

    The reason the link I posted no longer works is that Novartis no longer makes hydergine. However, generic hydergine is available. The best source I could find is HyPro 2, which is available in bottles of 60 capsules for $45 per bottle. Each capsule contains 2.25 mg of hydergine. (this is in contrast to the 1 mg tablets that my previous post referenced.) As many people (such as myself) are sensitive to hydergine, you might want to start off with half a capsule to see if you can tolerate it.

    I found that hydergine was quite powerful in higher doses, though not at all effective in lower doses; I just couldn't find a dose that provided a reliable increase in energy that was not too much.

    Dr. Goldstein would typically use a dose of 9 mg. a day of hydergine (4 capsules at two twice a day) for his ME/CFS patients.
     
    Sancar likes this.
  12. destypesetter

    destypesetter

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    I was just recently diagnosed with ME/CFS, though I'm sure I've had it for at least 8 years. I've been reading through lots of these forums and like what I read about Dr. Goldstein. Are there any doctors that have taken up his methods and seeing patients? Does his clinic still exist in Anaheim?
    Thanks, Diane
     
    Pink likes this.

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