1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Lessons from ME/CFS: Finding Meaning in the Suffering
If you're aware of my previous articles here at Phoenix Rising then it's pretty clear that I don't generally spend my time musing upon the philosophy of the disease. I find it better to spend my time reading research and trying my best to break it down to its core elements and write...
Discuss the article on the Forums.

Dr Jason's CAA webinar on CFS diagnostic criteria now on YouTube

Discussion in 'Latest ME/CFS Research' started by Sasha, Apr 20, 2010.

  1. Sasha

    Sasha Fine, thank you

    Messages:
    7,437
    Likes:
    5,304
    UK
    And here it is.

    Really fascinating - I recommend it. Some amazing facts about the implications of various criteria. I feel really glad that people of the calibre of Dr Jason are fighting our corner. Thanks to the CAA for putting this webinar out where we can all see it! Here's their blurb:

    "In this presentation, Dr. Leonard A. Jason of DePaul University explores whether current CFS and ME/CFS case definitions and whether they adequately identify patients who have this illness. He offers the argument that better case definitions might help identify more homogenous patient groups, which could facilitate the identification of biological markers for this illness. Dr. Jason has been engaged in several of the efforts to craft meaningful definitions for CFS. He will discuss the various CFS case definitions, how they impact research and care, and how the definitions might be improved to better serve researchers, clinicians, and patients."​

    There is a lot of information in here that can help you explain to any unsympathetic doctors (or even acquaintances) why you probably have a completely different illness to other people who are diagnosed as having "chronic fatigue syndrome" and who got better by exercising more/pulling themselves together/cheering up, etc. Knowledge is power!

See more popular forum discussions.

Share This Page