The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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Dr. Jarred Younger - updates

Discussion in 'General ME/CFS News' started by Sasha, Jul 19, 2016.

  1. Sasha

    Sasha Fine, thank you

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    We don't seem to have a general thread for this.

    Latest:

    https://www.facebook.com/permalink.php?story_fbid=1746809128930172&id=1543963919214695
     
  2. Billt

    Billt Senior Member

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    Still waiting for him to open up some more research. Hope to get our son there
     
  3. Sushi

    Sushi Moderation Resource Albuquerque

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    He doesn't have a clinical practice so the only way for your son to go there would be to participate in his research.
     
  4. Billt

    Billt Senior Member

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    Exactly Sushi, I had heard he was going to be doing more MRI research on the brain in the future. Since my son has severe brain fog, maybe they would include him in some of the research.
    We are not that far from him so that would be a plus too. Anything we can do to advance research !!!
     
    Silence, Ritto, Jennifer J and 4 others like this.
  5. Kati

    Kati Patient in training

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    Look up his website and get in contact with his research coordinator, there are great chances they are recruiting now, if not you can join their mailing list.
     
    Jennifer J, Comet, Billt and 2 others like this.
  6. Sushi

    Sushi Moderation Resource Albuquerque

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    I've applied for specific studies. It is easy to do online. You fill out a questionnaire.
     
    Jennifer J, Comet and Billt like this.
  7. Billt

    Billt Senior Member

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    Thanks Kati and Sushi, I have already done this and we are just waiting. Maybe since both my son and myself have similar problems they will take us both ! We'll see, have not heard anything from them though....
    Maybe we'll meet there !!!!
     
    Jennifer J, Kati and Comet like this.
  8. Sushi

    Sushi Moderation Resource Albuquerque

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    I did hear back, though I don't remember the time-line. You won't meet me there though because I wasn't accepted for the study!
     
  9. Kati

    Kati Patient in training

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    Sorry to hear @Sushi did they give you a reason?
     
  10. Sushi

    Sushi Moderation Resource Albuquerque

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    I'll PM you.
     
  11. Billt

    Billt Senior Member

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    So sorry to hear this !!!
    I have not heard from them at all, so maybe we still have a chance to go there
     
    Little Bluestem and Sushi like this.
  12. mango

    mango Senior Member

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    https://www.facebook.com/permalink.php?story_fbid=1756071484670603&id=1543963919214695

    ETA: Here's a link to the "Hot brain" video:
     
    BurnA, Billt, Sasha and 6 others like this.
  13. Billt

    Billt Senior Member

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    mango, thanks for the update !
     
    mango likes this.
  14. Sasha

    Sasha Fine, thank you

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    This is a study in which each patient gives blood every day to try to find out what is driving variations in how PWME/fibro feel from day to day. (I think Nancy Klimas has taken a similar approach.)

    It's an interesting video and well worth a listen. Thanks to Dr. Younger for the update!

     
    Last edited: Feb 19, 2017
    Forbin, Keela Too, nandixon and 5 others like this.
  15. Forbin

    Forbin Senior Member

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    I'm unclear on whether these variations are also seen in healthy individuals. If healthy individuals had variations in the same range as patients, it would suggest that the problems lies not with the variations themselves, but rather with patients' atypical reactions to these variations. To have an effect on the symptoms, you might have to reduce leptin (for example) to some level that is lower than what is found in a healthy individual.
     
    Last edited: Feb 20, 2017

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