1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
AVIVA Semi-Finals: National ME/FM Action Network is competing for $100,000
The National ME/FM Action Network in Canada is competing for $100,000 for biomedical research of ME and FM in the Aviva Community Fund contest. With thanks to all who helped, they made it through the first round of voting into the Semi-Finals.
Discuss the article on the Forums.

Dr. Illya Singh on Dr. Racaniello's Program - Send her questions.

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Cort, Aug 2, 2010.

  1. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
    Likes:
    441
    Raleigh, NC
    Dr. Illya Singh - a prominent prostate XMRV researcher and now engaged in a major study in CFS with Dr. Bateman and Dr. Light, will be talking with Dr. Racaniello this Friday. You can send your questions to Dr. Racaniello.
     
  2. George

    George waitin' fer rabbits

    Messages:
    846
    Likes:
    44
    South Texas
    OMG! OMG! OMG! I can't wait, what time, (BOING, BOING, BOING, BOING, doing the doggy boingy dance here!)
     
  3. V99

    V99 *****

    Messages:
    1,471
    Likes:
    1
    UK
    While pushing open a door?
     
  4. CBS

    CBS Senior Member

    Messages:
    1,376
    Likes:
    300
    Western US
    Don't Bateman and Light receive CAA funding? And what is Dr. Singh doing associating with the tainted CAA?
     
  5. V99

    V99 *****

    Messages:
    1,471
    Likes:
    1
    UK
    Do you really want me to point out the sarcasm?

    People have a right to be critical of the CAA.
     
  6. CBS

    CBS Senior Member

    Messages:
    1,376
    Likes:
    300
    Western US
    No need.

    So when is sarcasm OK? When the target isn't you?
     
  7. V99

    V99 *****

    Messages:
    1,471
    Likes:
    1
    UK
    Why, are you targeting me?
     
  8. LaurelW

    LaurelW Senior Member

    Messages:
    552
    Likes:
    92
    Utah
    Me too! Me too! Now if I could just clear the brain fog enough to figure out an intelligent question. How about, "When are you going to come up with a cure?"
     
  9. V99

    V99 *****

    Messages:
    1,471
    Likes:
    1
    UK
    I know she wont tell us, but how about, how's the study going?
     
  10. CBS

    CBS Senior Member

    Messages:
    1,376
    Likes:
    300
    Western US
    It's not you. I am targeting the argument that the snide and sarcastic are part of a constructive dialog. To me the problem is that it is all fun and games until you're the target. I know these sorts of exchanges are exhausting and can do real harm. I don't want that for you and I don't want that for anyone else on these forums. This ought to be a place for vigorous discussion and I have no issues with questions, constructive criticism, and the expression of anger or frustration. We all go through these in spades and in order for all of that not to get out of control, this needs to be a place where decorum and respect and goodwill in the form of not jumping to conclusions about the intent of others are the rule. Sarcasm and snide remarks infer intent or callous disregard.

    I didn't want to hurt you but it wouldn't be honest of me to say that I didn't want you to feel the sting of a standard that you were trying to defend. Enough?

    ETA: Sarcasm also has a way of hijacking threads in a heart beat. This thread is important and it deserves not to be interfered with.
     
  11. garcia

    garcia Aristocrat Extraordinaire

    Messages:
    936
    Likes:
    104
    London, UK
    No you are not, you are being a bully. No one is advocating "snide and sarcastic". Except you.
     
  12. V99

    V99 *****

    Messages:
    1,471
    Likes:
    1
    UK
    I don't have a problem if it is me, but you just used sarcasm to support the CAA, when you keep saying that you hate the use of sarcasm to criticise the CAA. You can't have it both ways. Sorry to point this out, but I haven't felt any sting, not one. I just believe that people should be able to question and criticise any organisation they wish to.

    I'm not sure what I think of the CAA, my experience is with the charities in the UK, which are generally a disgrace, except for a couple of them. However, I have seen others express valid reasons for bringing the CAA to task. Perhaps I will feel the same way, perhaps not, it depends on what I learn about them, and how they act.
     
  13. Otis

    Otis SeƱor Mumbler

    Messages:
    1,116
    Likes:
    116
    USA
    Probably not. I sent that question to the CAA in hopes of getting some info. The lockdown pre-pub is extra tight right now. Perhaps if we listen carefully we can hear something between the lines.

    Can't wait.
     
  14. VillageLife

    VillageLife Senior Member

    Messages:
    674
    Likes:
    36
    United Kingdom
    Im really pleased Dr. Illya Singh is coming on! I really like her.
    Well my question would be, if xmrv is it! then when would drugs be available to treat us, if everything went to plan?
    thats my question, I will email it now.
     
  15. CBS

    CBS Senior Member

    Messages:
    1,376
    Likes:
    300
    Western US
    I used sarcasm (this one time) to make a point about the sweeping damage done by sarcasm when the truth of the matter is far more complicated and nuanced. My feelings about the CAA (and the WPI and nearly every other advocacy organization that I can think of) are far more complex than that and probably not dissimilar from yours.
     
  16. V99

    V99 *****

    Messages:
    1,471
    Likes:
    1
    UK
    How about one cough for 'good', two for 'it ain't going to happen'?
     
  17. LaurelW

    LaurelW Senior Member

    Messages:
    552
    Likes:
    92
    Utah
    Definitely. I saw Dr. Bateman a couple weeks ago, and she wouldn't tell me anything. Not even an expected finish date. I hope no news is good news.

    We are having an all-day CFS conference here on Sept. 11--Dr. Ila Singh is going to talk during the physician-only section. I so wish they would let us laypeople into those sessions.:Sign Please:
     
  18. CBS

    CBS Senior Member

    Messages:
    1,376
    Likes:
    300
    Western US
    I'm very much looking forward to the CFS conference being put on by OFFER. I'm trying to get my PCP to attend.
     
  19. V99

    V99 *****

    Messages:
    1,471
    Likes:
    1
    UK
    I remember Racaniello saying he would be interviewing Singh, but that was weeks ago. I wonder why it has taken so long? I will assume it was the research.
     
  20. CBS

    CBS Senior Member

    Messages:
    1,376
    Likes:
    300
    Western US
    Here's the link to the OFFER conference web-site: http://www.offerutah.org/conferences.htm

    The physician conference registration is being administered by Intermountain Heath Care (IHC). IHC is a huge provider in the region (probably provides some where in the neighborhood of 70% of all the care in the intermountain region of the west slope of the Rockies). Nice to see them so involved. I understand that at some point, a video of portions of the conference will be made available.
     

See more popular forum discussions.

Share This Page