1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
New Exercise Study Brings Both Illumination and Questions
Simon McGrath looks at new objective evidence of abnormal response to exercise in ME/CFS patients, and the questions that researchers are still trying to answer ...
Discuss the article on the Forums.

Dr Ian Lipkin's $1.27m gut microbiome study - crowdfunding campaign - news and updates

Discussion in 'Fundraising' started by Bob, Apr 4, 2014.

  1. Bob

    Bob

    Messages:
    8,857
    Likes:
    12,440
    South of England
    DonationsByCountry.png
     
    rosie26, SOC, Sasha and 1 other person like this.
  2. Bob

    Bob

    Messages:
    8,857
    Likes:
    12,440
    South of England
    DonationsByState.png
     
    Last edited: Jun 11, 2014
    Sasha, aimossy, Simon and 1 other person like this.
  3. geraldt52

    geraldt52

    Messages:
    76
    Likes:
    272
    I'd encourage anyone who hasn't to read this thread, because it deals with CFS research funding (don't be put off by the title):

    http://forums.phoenixrising.me/inde...ure-can-be-sign-of-fatigue.30801/#post-471506

    While it doesn't mention "our" crowdfunding by name, I suspect the comment "even if they have to rely on crowdfunding" may be in relation to Dr. Lipkin.

    This might be an opportunity for someone to email the author "officially" on behalf of The Microbiome Discovery Project...who knows, it might catch his eye, get a response, and lead to a follow-up. Even if it was just a thank you and a link to the Project website I would think it's worth doing. I just think that something that appears to be from an "organization" is more likely to get noticed than something from a random name on the internet.

    I "liked" the article, and I hope others will too, but I wasn't able to enter a "comment" for some reason.
     
    aimossy, Ritto, Blue and 2 others like this.
  4. Tuha

    Tuha Senior Member

    Messages:
    821
    Likes:
    982
    it´s getting really international this study :),

    What do you think - which will be the last white place in the US map? I am guessing just for fun Montana :)
     
    Sasha likes this.
  5. Bob

    Bob

    Messages:
    8,857
    Likes:
    12,440
    South of England
     
    Ritto, Sasha, Sean and 4 others like this.
  6. Bob

    Bob

    Messages:
    8,857
    Likes:
    12,440
    South of England
     
  7. Sasha

    Sasha Fine, thank you

    Messages:
    8,773
    Likes:
    8,150
    UK
    Just coughed up my June donation - join me, who can! :)
     
    aimossy, Sean, Bob and 2 others like this.
  8. Bob

    Bob

    Messages:
    8,857
    Likes:
    12,440
    South of England
     
  9. Bob

    Bob

    Messages:
    8,857
    Likes:
    12,440
    South of England
    70000.png
     
    Last edited: Jun 19, 2014
  10. aimossy

    aimossy Senior Member

    Messages:
    2,907
    Likes:
    3,931
    NZ
  11. aimossy

    aimossy Senior Member

    Messages:
    2,907
    Likes:
    3,931
    NZ
    Persimmon, Firestormm and rosie26 like this.
  12. geraldt52

    geraldt52

    Messages:
    76
    Likes:
    272
    Is our fundraising-update-machine broken...or, even worse, our fundraising-update-person not doing well? I hope that no updates doesn't mean that donations have stopped coming in....
     
    Ritto and Sean like this.
  13. Sasha

    Sasha Fine, thank you

    Messages:
    8,773
    Likes:
    8,150
    UK
    This just posted on FB:

    Hello everyone,
    Sorry for the delay in total updates - there was a small hiccup. Our last update had to be reduced as a donor accidentally gave too much and was reimbursed. But we have a fabulous new total, folks!

    New total is: $94,096 from 465 donations!

    Amongst all the wonderful new donations we received, someone contacted Columbia University and donated a whopping $25,000!
    Great news for all who have donated and people who are supporting the research.

    Thank you all so much for every single donation and your support.

    Together we can make it happen!
    GLOBAL CROWDFUND!​

    $25k! Wow! That was a very generous donor! :balloons::balloons::balloons:
     
    taniaaust1, Aileen, aimossy and 12 others like this.
  14. Bob

    Bob

    Messages:
    8,857
    Likes:
    12,440
    South of England
     
    Sean, Sasha and rosie26 like this.
  15. Bob

    Bob

    Messages:
    8,857
    Likes:
    12,440
    South of England
    Most of the team are struggling with their health at the moment, and we have a shortage of volunteers.
    If anyone would like to help out, in any way, then please get in touch.
    It's a small friendly team, and you don't need to make a major commitment.
     
    vli and taniaaust1 like this.
  16. Esther12

    Esther12 Senior Member

    Messages:
    5,384
    Likes:
    5,887
    Best wishes to all those involved.

    It feels slow getting to a million, but $100,000 in a few months from a newly put together group of fund raisers is pretty darn good going.
     
    Sidereal, Sasha, Ritto and 6 others like this.
  17. Bob

    Bob

    Messages:
    8,857
    Likes:
    12,440
    South of England
     
  18. geraldt52

    geraldt52

    Messages:
    76
    Likes:
    272
    I'm really sorry to hear that people on the team aren't doing well....when the updates went silent, I feared as much.

    By way of a suggestion, maybe a list of that tasks that need doing regularly could be posted, with just the briefest description. People might be more inclined to volunteer if they can wrap their minds around what they might be getting into, before they step forward. As a survival mechanism, I think most of us have developed a knee-jerk reaction to not involve ourselves in anything, for fear of getting in over our heads and ending up on the sofa for weeks...and yet some of the tasks may be small enough to manage.

    Of course I realize that making a list of tasks in itself constitutes yet another task, but it might bring some additional help forward.
     
    Sean, aimossy and Bob like this.
  19. Bob

    Bob

    Messages:
    8,857
    Likes:
    12,440
    South of England
    Thanks Gerald. I'm the same. I avoid signing up for any long-term commitments. My capacity to do anything is unreliable and random, and I need loads of time to myself resting, without responsibilities. So I think what you've suggested is a great idea. I'll chat to the team about it.
     
    Sean and aimossy like this.
  20. Bob

    Bob

    Messages:
    8,857
    Likes:
    12,440
    South of England
     

See more popular forum discussions.

Share This Page