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Dr Gabrielle Murphy at the Royal Free?

Discussion in 'General ME/CFS Discussion' started by Wolfiness, Aug 9, 2017.

  1. Wolfiness

    Wolfiness Activity Level 0

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    Any use? This is largely hypothetical, as I'm entirely bedbound and they don't treat you unless you can come in...

    I'd say I'm at about 1 or 2 out of 100 on the Bell Fatigue Scale. I need a doctor competent to care for me and avoid hospital admission if/when I'm no longer able to communicate or swallow and need tubes etc.

    I'm afraid (as in traumatised) that all any NHS service will do is yet again offer me wholly inadequate and inappropriate rehabilitative and management advice which I already know and have tried and found useless many times over.
     
    Last edited: Aug 9, 2017
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  2. Esther12

    Esther12 Senior Member

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    I really wish I could tell you nothing but good things, but she is connected to the PACE lot:

    http://me-pedia.org/wiki/Gabrielle_Murphy

    It could still be worth seeing her? Personally, I wouldn't though.

    Best wishes with everything.
     
  3. MEMum

    MEMum Senior Member

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  4. Wolfiness

    Wolfiness Activity Level 0

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    @MEMum It was Dr Shepherd that recommended her... GP referred me but they don't treat you unless you can come in.
     
  5. charles shepherd

    charles shepherd Senior Member

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    I know Dr Gabrielle Murphy and she comes across as a kind and caring physician with a pragmatic approach to management

    Most of the feedback we receive at the MEA on the ME/CFS service at the RFH is positive and I am currently dealing with one person who is very upset about not being able to get funding for on-going care there

    If someone in London wants to see a private and reputable physician, who is not going to arrange for expensive and unproven tests and treatments, I would recommend Dr William Weir. Dr Weir used to work at the RFH. He does do domiciliary visits as well.

    CS
     
  6. ukxmrv

    ukxmrv Senior Member

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    Personally I would see her but I've never meet anyone as severe who has seen her and said good things. I've meet Dr Murphy and had a free exchange of views. I've also met patients including one with private tests that she took seriously.

    There's definitely a line there that she won't cross through with NHS and private testing and treatment. I just don't know what that it yet.

    I know this is a hypothetical question but have you considered Dr Weir or Dr Paul Worthley

    http://www.metrust.org.uk/patient-care/
     
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  7. wdb

    wdb Senior Member

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    What sort of tests and treatments might be offered in that case ? I got the impression that ME specialists fell into two camps, ones that arrange for expensive and unproven tests and treatments and ones that tell you that unfortunately there is little that can be done. I saw Dr Bansal who was of the later type.
     
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  8. msf

    msf Senior Member

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    What´s the point though? You can get no treatment and no help from the NHS for free.
     
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  9. Jenny

    Jenny Senior Member

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    I'm sorry you're so ill Wolfiness. There has been quite a bit of discussion on here about the Royal Free. Do a site search and messages will come up.

    Dr Murphy was helpful to me - she referred me to an immunologist who gave me lots of non-standard tests which showed that I had immune system problems. The immunologist was also willing to prescribe long term anti-virals and then try other meds that I asked for.
     
  10. Esther12

    Esther12 Senior Member

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    Surely if she was a genuinely kind and caring physician, then she would have spoken out about the way results from PACE were misrepresented, and the way patients were smeared for pointing this out. It's easy for medical professionals to present themselves as 'kind and caring' while being well paid for promoting quackery, and some patients may even be suckered into thanking them for it (homeopaths get praise too), but that is not a moral way for them to live their lives.
     
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  11. Daisymay

    Daisymay Senior Member

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    I'm sorry you're so poorly Wolfiness, I hope you can find someone to help. I've spoken once to Dr Weir and know of him and he's a very decent chap and knowledgeable on ME but of course you have to pay. Take care x
     
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  12. Wolfiness

    Wolfiness Activity Level 0

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    Dr Weir is rather difficult to get hold of IME.
     
  13. charles shepherd

    charles shepherd Senior Member

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    His contact details are readily available by googling Dr William Weir…

    CS
     
  14. charles shepherd

    charles shepherd Senior Member

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    Most people who go into medicine do so because they genuinely want to help people

    And there are always going to be disagreements between doctors, and between doctors and their patients, as to how to manage all kinds of illnesses

    But that does not mean that a doctor cannot be a kind and caring physican at the same time - whatever side of the fence they occupy

    As has already been pointed out in this discussion, and in feedback to the MEA, there are good reports (and some excellent reports) about this particular doctor

    So if someone in Norh West London wants to see an NHS physician for further help with either diagnosis or management (where there is no compulsion to follow what is advised) being referred to the RFH ME/CFS service is one option to consider…...

    CS
     
  15. Valentijn

    Valentijn Senior Member

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    Sure, they can be a wonderful person. But if they're getting the basics wrong regarding the disease which they purport to treat, they're dangerous. And given the popularity of deceiving patients among CBT fans, I'd never trust one until they had a very public "come to Jesus" moment with a renouncement of psychosomatic modalities.
     
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  16. Esther12

    Esther12 Senior Member

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    That's an understanding of what it means to be a 'kind and caring physician' that seems to set very low standards for doctors! It would mean that all manner of quacks could be classed as kind and caring physicians. I think that patients deserve better than that.

    She's a co-author of the PACE trial, and has a responsibility to speak out about the way in whichh results were misrepresented, and then patients smeared for speaking out about this. Just last year she was a co-author of the PACE response to Geraghty: http://journals.sagepub.com/doi/10.1177/1359105316688953

    This is not the behaviour of a kind and caring physician. No matter what tone is adopted during a consultation it is not kind and caring to promote homeopathy to a patient, and nor is it to promote PACE as a respectable piece of research.

    It is in the interest of the medical profession to set low standards for itself, and it has been doing this for a very long time. This has been to the detriment of patients, and I think we should make it clear that the low standards of some of these people are not acceptable.
     
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  17. Snowdrop

    Snowdrop Rebel without a biscuit

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    Quote is for emphasis.

    Kind and caring can be an emotional salve for the patient when one is being ignored and otherwise maligned but it hardly meets any kind of standard for proper medical care especially if the kind and caring person is wholly misguided in their beliefs about the illness.
     
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  18. Esther12

    Esther12 Senior Member

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    Yes. A lot of ME/CFS patients are so routinely mistreated, significantly because of the sort of problems caused by PACE, that they can be over-joyed to just get an appointment with someone in a position of medical authority who speaks to them with a sympathetic tone of voice. When the same authority figures are then helping to cause so many of the problems patients face outside of the consulting room, that is nothing to be grateful for.
     
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  19. Wolfiness

    Wolfiness Activity Level 0

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    Does anyone have contact details for Dr Murphy because my GP contacted her via the RF a month ago and they haven't replied to him. I know she's part time but she's not listed, either in the fatigue service or the RF's general list of consultants. https://www.royalfree.nhs.uk/services/staff-az/letter/m/P60/
     
    Last edited: Sep 14, 2017
  20. ukxmrv

    ukxmrv Senior Member

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