The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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Dr Enlander vs Dr Frid

Discussion in 'ME/CFS Doctors' started by LivingwithFibro, Sep 17, 2017.

  1. LivingwithFibro

    LivingwithFibro Lily

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    One of those versus threads again :rofl:

    I'm curious to know, if you've been a patient of Dr Enlander or Dr Elena Frid and how they approach CFS. I'm not in the states and considering consulting with either over the phone - in conjunction with my local doctor.
     
    pibee likes this.
  2. Silencio

    Silencio Senior Member

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    I was a patient of dr. Frid. She doesn't treat ME/CFS, or at least, did nothing for me. She leans towards the opinion that it's always an infection, i.e. Lyme disease, which I think is a much too narrow and simplistic approach. I don't think neurology as a field currently has much in way of solutions for us until research progresses further, so not sure it's worthwhile.
     
    LivingwithFibro likes this.
  3. Daffodil

    Daffodil Senior Member

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    the doctor who is furthest along in researching this disease is kenny demeirleir. i wouldnt see anyone else.
     
    LivingwithFibro likes this.
  4. LivingwithFibro

    LivingwithFibro Lily

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    I am not lucky enough to have that choice yet. I need to get several tests done.
     
  5. Daffodil

    Daffodil Senior Member

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    do you mean you need someone who takes insurance?
     
  6. Jesse2233

    Jesse2233 Senior Member

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    Did she offer plasmapheresis? I've heard of her using it in conjunction with IVIG
     
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  7. Silencio

    Silencio Senior Member

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    Not to me Jesse.. she didn't offer me anything. But it was about 3 years ago, so perhaps she does that now.
     
    LivingwithFibro likes this.
  8. LivingwithFibro

    LivingwithFibro Lily

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    Nope, I'm in a country in Asia where CFS is unknown so my best bet is to find a doctor who can work with my local doctor. I cannot travel either due to health reasons plus getting a medical visa based on CFS is hard so these two doctors are my best bet....
     
    Joh likes this.
  9. Daffodil

    Daffodil Senior Member

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    but do these 2 doctors do that without seeing you? I thought that was not allowed..
     
  10. fireflymd

    fireflymd

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    Daffodil, do you have contact information for Dr. DeMeirleir?
     
  11. Daffodil

    Daffodil Senior Member

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    fireflymd likes this.
  12. LivingwithFibro

    LivingwithFibro Lily

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    They cannot prescribe anything or treat me, they'll only collaborate and guide my physician in the right direction.
     
  13. Daffodil

    Daffodil Senior Member

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    oh thats great!
     
    LivingwithFibro likes this.
  14. Mollymolly

    Mollymolly

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    I just started dr Enlander protocol like a week ago
     
  15. LivingwithFibro

    LivingwithFibro Lily

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    Oh, what exactly does it entail?
     
  16. lnester7

    lnester7 Seven

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    I thought Dr. Enlannder was retired, is that not the case?
     
  17. Mollymolly

    Mollymolly

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    No semi retirement
     

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