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Dr. DeMeirleir speaking Jan 28/13

Discussion in 'Latest ME/CFS Research' started by Daffodil, Jan 28, 2013.

  1. Daffodil

    Daffodil Senior Member

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    this 4:00 pm PST presentation will not be broadcast live due to the fact that Dr. DeMeirleir will be speaking about his paper that has not yet been published.

    we will have to rely on the reporting of someone who is there....
  2. snowathlete

    snowathlete

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    This was today's talk at Reno, right?

    Apparently it was recorded but won't be available till the paper is published.
    I expect that anyone there is under orders not to speak of it, which although frustrating, would be understandable.
  3. Daffodil

    Daffodil Senior Member

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    i thought it was happening today at 4 pm?
  4. Dolphin

    Dolphin Senior Member

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    Thread title has Jan 23.
  5. Daffodil

    Daffodil Senior Member

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    o chit. my fog is severe. please someone fix this? i meant 28th
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  6. Helene

    Helene

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    If KDM is giving a talk in an auditorium, it is a public place. Information should flow out of the place. Perhaps a journalist will be there. If it's a private closed talk by invitation only, that's another matter. But it has not been advertised as this.

    I trust folks will be posting here whatever they come across on twitter, etc.
  7. snowathlete

    snowathlete

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    I Hope to hear something then. I know he considers the discovery to be significant.
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  8. Kati

    Kati Patient in training

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    Embargoed information is embargoed.
    We as patients should be able to respect that until the paper is published.

    What is at stakes here is the ability of the author to publish and to respect his contract with the publishing paper.

    My 2 cents.
  9. justy

    justy Senior Member

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    Does anyone know when the paper will be published?
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  10. Helene

    Helene

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    KDM has already told some of his patients bits and pieces of his core thesis. Of course, treatment is another issue.

    The paper will likely have lots of details. Perhaps questions will be allowed from those present. But we should hear something. Generally, at open conferences the speaker gives good chunks of information, then the published paper offers details, statistics, proofs, elaborations, etc.
    Nico and SOC like this.
  11. Daffodil

    Daffodil Senior Member

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    i hope the paper talks about potential treatments but i just dont think it will. the discovery is significant but i dont know how it will translate into treatment or when :-/

    it was an open presentation but people were probably asked not to say anything.

    tom kindlon is in ireland and didnt go ...he often tweets about this kind of thing
  12. Daffodil

    Daffodil Senior Member

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    justy..the paper should be published some time next month, march 1 at the latest.
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  13. Daffodil

    Daffodil Senior Member

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    So the talk is called "From CFS to autoimmunity". I guess we can now consider ourselves afflicted with an autoimmune disorder. this is the way other research groups are leaning towards, as well.
    Nico likes this.
  14. SOC

    SOC Moderator and Senior Member

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    Any idea where he's talking? A conference?
  15. Daffodil

    Daffodil Senior Member

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  16. dece

    dece

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    According to a recent q&a with K.De Meirleir the publication will be at the beginning of march in 'In Vivo'.

    Kind regards
    justy and Nico like this.
  17. Sushi

    Sushi Moderator and Senior Member Albuquerque

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  18. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Slight correction to the title: ME/CFS From Infectious Disease to Autoimmune Disorder

    Sushi
    SpecialK82 likes this.
  19. SOC

    SOC Moderator and Senior Member

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  20. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Daffodil likes this.

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