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Dr. Deckoff-Jones posts about the recent papers

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Jemal, Jun 1, 2011.

  1. Jemal

    Jemal Senior Member

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    I think this warrants its own thread. Random quote:

    and

    More:
    http://treatingxmrv.blogspot.com/2011/05/sad-day-for-patients.html
     
  2. Alexia

    Alexia Senior Member

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    After reading this it is more clear to me what are the goals of the war against XMRV !!
     
  3. eric_s

    eric_s Senior Member

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    Holy ... and these are facts that can be verified or falsified.

    Deleting a bit... maybe better, but i'm not a cynic by nature
     
  4. eric_s

    eric_s Senior Member

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    It really feels like yesterday was 9/1/1939... See you at Nuremberg. Seats available now...
     
  5. eric_s

    eric_s Senior Member

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    Read what Annette Whittemore says about Konstance Knox and her institute here.
     
  6. Parismountain

    Parismountain Senior Member

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    Are we to think a name change for WPI is in order? If the original Science paper somehow holds up to be right I'm only going to contribute funds to a Mikovits Whittemore Institute, the MWI because Dr. Mikovits if proven right deserves much more than this world can give.

    I probably have said this before but if I were Mikovits and I saw all the ways scientists are suggesting my tests have gone wrong, privately I'd got to a Chenney or a Lapp and say hey FRIEND, send me 50 of your finest CFSers, flat out not doubt types and send me 50 healthy and you keep the knowledge of who is sick and well. I'll run my XMRV tests and list off to you by sample positives and negatives.

    I've just got to think she's done checking like this and she nails it time after time. That would help explain to me her tenacity. If she's merely tenacious by personality type and hasn't done this kind of triple checking that she's onto something well then quite possibly she's mad (as in nuts).
     
  7. Jemal

    Jemal Senior Member

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    I didn't even read that letter yet, Eric. Thanks for linking. Knox gets heavy criticised! (I hope they can back up the criticism and that it's okay that Dr. Deckoff-Jones posted this letter).
     
  8. eric_s

    eric_s Senior Member

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    Yes, i have had the same thought many times. I actually think a ME/CFS organisation should have done this long time ago.
     
  9. eric_s

    eric_s Senior Member

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    Since she works for the WPI i think it's quite unlikely she did not have permission to post it.

    It really looks as if everybody who has a problem with the WPI banded together to destroy them. I don't know about Levy, but certainly for Peterson and Konstance Knox and her institute it looks like this.

    And the interesting thing is that all those mentioned incidents are things that can be proven or disproven. I wonder if none of what happened was of a quality so that it would have legal consequences. Certainly the WPI checked this.

    The Sicilian mafia could learn from all of this...
     
  10. Esther12

    Esther12 Senior Member

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    I don't think stuff like this helps the WPI, and could partially explain why Science want to distance themselves from them earlier than many might expect.
     
  11. currer

    currer Senior Member

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    Unfortunately its normal. All human beings behave this way when the stakes are high especially when money is involved, or even just prestige. The history gets tidied up afterwards, thats all, once people have calmed down.
    That is not the reason Science is stabbing them in the back.
     
  12. eric_s

    eric_s Senior Member

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    What, Esther? Science has a problem with an open letter, but doesn't mind the conduct described in this letter and publishes those people's work? That would be extreme double standards.
     
  13. SpecialK82

    SpecialK82 Senior Member

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    Dr. Peterson has been an advocate, friend, and hero of the CFS community for a long time. I find it very hard to believe that he would do anything that would harm us. If he does not believe in the XMRV theory, then it is an intellectual debate. Just because some people believe it and some do not, does not mean that then they are "for" us getting well or "against" us getting well. Some of us, including me, just wants to see the science proceed, either replicate XMRV or rule it out so that we can go forward.

    We will find out the results of Lipkin's and BWG studies soon enough.
     
  14. Parismountain

    Parismountain Senior Member

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    I'm just sitting here thinking funny thoughts like who is Konstance Knox and why is she Konstantly Knocking WPI?
     
  15. Daffodil

    Daffodil Senior Member

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    paris....lololol hehehe

    dang...dr. deckoff jones certainly doesnt mince words, does she lol
     
  16. Cort

    Cort Phoenix Rising Founder

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    I think its just horribly unfortunate honestly.... I wish we could just debate this on the facts of the science rather than dragging in ideas about Dr. Peterson trying to destroy the WPI or that all Knox wants to do is slam the WPI because she had a problem with VIP Dx....

    To suggest that Dr. Peterson, who has been a stalwart proponent of CFS patients for over 30 years and has dedicated his practice to helping them through thick and thin, would set aside his concern for their welfare in order to get back at the WPI is just AHHH - so upsetting!!! Why do we have to get into this muck???

    Why do we have to get into the reputation destroying gossip....According to this post Konstance Knox is a vindictive b**** who would gladly cast aside her reputation in order to get back at that small lab from in Reno :)))

    Of course Levy is in here too - because after 40 years of research and 500 plus papers - he is consorting with these two plus he has Abbott Labs on board and all they care about is that their test gets the money...(never mind that they are rapidly testing themselves out of the market with no positives...)

    Resorting to these kind of conspiracy theories only hurts the WPI in my opinion.






     
  17. LJS

    LJS Insert Witty Comment Here

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    I could not agree more. The statements in the post are disturbing, you know when you start a blog post like this it is not going to come off well..
    What is she talking about?? This is science taking its course. If no one can find XMRV it does not mean it is a concerted effort to deny patients an answer, that is crazy talk. It means the WPI is most likely wrong and the science clearly supports that at this point.

    How the WPI has handled this whole thing is so far beyond ridiculous I have no idea why CFS patients are not speaking out against it. Instead of the WPI reaching out to others that disagree with them they personally attack them. The attacks on Dr. Peterson in the blog post are the case and point and frankly just bizarre ramblings, I do not understand why they constantly go into conspiracy theories of how the world is against them and it is part of some big plan to get the WPI shut down.

    They way the WPI has constantly resorted to rumors and childish blame games is completely unacceptable for a institution that is trying to be the face of CFS research and represents the CFS community to outsiders. If you want others in the science community to accept and respect your work you have to be respectful and debate the facts not jump to personal attacks, conspiracy theories, rumor spreading, and excuses when others cannot replicate your results.
     
  18. floydguy

    floydguy Senior Member

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    So who do you think deserves support?
     
  19. liquid sky

    liquid sky Senior Member

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    I think you summed it up quite well.
     

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