Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
Discuss the article on the Forums.

Dr. Bateman: Global Progress Report Nov 2nd

Discussion in 'Upcoming ME/CFS Events' started by RL_sparky, Nov 2, 2016.

  1. MEMum

    MEMum Senior Member

    Messages:
    435
    Likes:
    2,229
    Julia Newton in UK has studied ME alongside PBC, quite possibly because she could get funding for PBC resesarch.
    Her papers are largely re POTS etc.
     
    ZeroGravitas and AndyPR like this.
  2. LaurelW

    LaurelW Senior Member

    Messages:
    602
    Likes:
    228
    Utah
    Thanks for posting the contents of the talk. I just want to add a bit more detail about PEM. Dr. Bateman said that intense exercise for 30 seconds to 2 minutes more episodically doesn't cause as much PEM as more prolonged, less intense exercise. The Drs. Light did a 25 minute bicycle test of medium intensity in the original gene expression studies.
    This information is really useful to me to help regulate my activities. Even if I use a heart rate monitor and keep below what I figure is my anaerobic threshhold for a longer period, I get more PEM than breaking it up into really short segments of higher intensity.
     
  3. Nielk

    Nielk

    Messages:
    6,891
    Likes:
    10,658
    Forgive and forget? Are you kidding me? Because they have said that they will issue two RFAs?

    Even if they apologize and pay back 8 billion dollars for the past funding due to us, how are they going to bring back all the thousands of lives lost?

    I attended the IACFSME conference and was very excited about the many international researchers presenting their abstracts and study results. Some were very interesting and promising but in every case, they were small studies that needed large scale replications.

    The researchers are there and they want to do the work, it is NIH that is falling short.

    We don't need CDC doing a study that five years in has nothing to show for it yet. They are only ready to publish their method of study so far and they refuse to do a second day exercise test on patients. Someone asked the question at the conference of Dane Cook who is performing the exercise study for the CDC, about the second day exercise and he replied that they don't need it for what they are looking for. Which makes perfect sense because Dr. Unger if the CDC does not want to find PEM!

    What we need is extramural funding for our expert researchers to continue their work and to do large scale replications INDEPENDENT from the gov't health agencies. If Collins is so serious about helping us, he should go to congress and champion for us asking for 2 billion dollars to start us off. That is what serious looks like.
     
  4. Nielk

    Nielk

    Messages:
    6,891
    Likes:
    10,658
    Wildcat likes this.
  5. ahmo

    ahmo Senior Member

    Messages:
    4,420
    Likes:
    6,748
    Northcoast NSW, Australia
    ZeroGravitas, Comet and Neunistiva like this.
  6. ZeroGravitas

    ZeroGravitas

    Messages:
    24
    Likes:
    205
    UK
    Ops, don't thank me too much - just happened to do a quick edit of my post and found 2-3 dozen spelling errors to fix. Yikes! (Who let the dyslexic with brain fog type up a transcript?! :confused:) Sure there's a dozen or so more, and still crossing fingers over some names.
     
    AndyPR likes this.
  7. ZeroGravitas

    ZeroGravitas

    Messages:
    24
    Likes:
    205
    UK
    The Bateman Horne Centre blog now has the a post up on this progress report, including a new video with the slides inserted (although sound is a little rougher than the first video):
    It also has a link to the (slightly modified) slides as a PDF file:
    Bateman Slides1.jpg
     
    mango, AndyPR and Neunistiva like this.

See more popular forum discussions.

Share This Page