Forgive and forget? Are you kidding me? Because they have said that they will issue two RFAs?
Even if they apologize and pay back 8 billion dollars for the past funding due to us, how are they going to bring back all the thousands of lives lost?
I attended the IACFSME conference and was very excited about the many international researchers presenting their abstracts and study results. Some were very interesting and promising but in every case, they were small studies that needed large scale replications.
The researchers are there and they want to do the work, it is NIH that is falling short.
We don't need CDC doing a study that five years in has nothing to show for it yet. They are only ready to publish their method of study so far and they refuse to do a second day exercise test on patients. Someone asked the question at the conference of Dane Cook who is performing the exercise study for the CDC, about the second day exercise and he replied that they don't need it for what they are looking for. Which makes perfect sense because Dr. Unger if the CDC does not want to find PEM!
What we need is extramural funding for our expert researchers to continue their work and to do large scale replications INDEPENDENT from the gov't health agencies. If Collins is so serious about helping us, he should go to congress and champion for us asking for 2 billion dollars to start us off. That is what serious looks like.